Next consultation wait

  • 5 replies
  • 80 subscribers
  • 62 views

Hi everyone I got diagnosed with bladder cancer last Thursday (4th Sept) then had another scan last Friday to see if it’s spread, I now have another consultation but it’s not until 9th October which has put my brain into overdrive, I don’t know if that means it’s really bad or what! My friend told me that the waiting was the worst part of this journey he’s so rite 

  • Usually with the NHS no news or delayed news is better news or good news. 

    If it's bad news you will almost certainly know sooner rather then later. That is is my experience anyway and what I was told when I questioned why I hadn't heard anything from scans etc I'd had, no results at all. 

    So try not to dwell too much worrying about the what it's until you have some solid evidence to go on, once you know what your sealing with and the netting is out the way at least you can have a clearer picture going forward. 

    The waiting is never easy at all so easier said than done, but try to do stuff to take your mind off things as worrying only tens to make things worse in my opinion. 

    Good luck with the appointment and I hope it goes better than you expect. 

    Chin up and try not to overthink things, overthinking is bad and in fact sometimes thinking at all is bad. 

    ________________

    My name is Simon.

    Much love and hope to everyone past future and present. 

    I also hate autocorrect and hope people can make sense out of my posts when it changes half the words I type.

  • Hi  . There is a lot of waiting in this game. You can never read anything in to the timings of meetings. Have you had a TURBT procedure yet ? Best wishes.

    Best wishes to All,   rily.

    Community Champion Badge

    What is a Community Champion ?

  • Not had the TURBT they can’t reach the tumour as it’s in a diverticulitis in my bladder, so just a waiting game, thanks for the replies, trying not too think is usually easy for me lol got a little harder these last few days 

  • Hi Golf, what you have posted sounds normal, i think what they do is collect all the information on you regarding scans ect, then discuss you in a meeting and collate a treatment plan for you…they want to have as much information as possible before contacting you…try not to read anything into how long before they contact you…

    a couple of things that you are gonna think is mad…both of which I still struggle with..

    1. Don’t worry and stress yourself about this…it’s not gonna help you…

    2. dont put your life on hold waiting for results, appointments ect….

    your probably thinking WTF is this bloke on about. 

    just for the record, im 18 months into my journey and am just taking my own advice….

    The mental side of this is horrible, I hope you have a good support nerwork. 
    ask anything on here and someone will always try and respond…

    no such thing as a silly question…

    Nigel 

  • The waiting is horrible especially at the beginning of the diagnosis.If you can try and find something to distract yourself it will help.There will still be waiting in the future but things become easier once you know about treatment.Best wishes Jane