Hi all
It's ask the group again
I had to be admitted to hospital Sunday because I got water infection and I wasn't getting any urine into my bag . That resolved and I'm still on antibiotics but yesterday my pee just stopped coming through for 15 hours so off to A&E i went again waiting in waiting room for 3 hours and then suddenly a sharp pain and the bag fills to the top in a matter of 2 mins .had to run to the loo to empty and it filled again. I decided to go home as the blockage was sorted and it was another 5 hours wait to see a doctor.
I've called urology this morning but noones called back yet .my stoma looks like it's trying to heal over ??
Is that even a thing?
Any info or thoughts greatly recieved x
Are you using a cera ring with your bag? I found that after a while the ring began to absorb a lot of the urine @ mucus and was closing over the hole in the bag and not letting the stoma get the urine into the bag. As soon as I stopped using the ring and became even more careful to make sure the flange was sticking properly around the stoma it all resolved.
but if it's the hole in the skin around the stoma then I think you need to ring the surgical CNS again
Latestart
Hi podperson
Wondered if the Urology department have got back to you; I didn’t have a complete stoppage as you describe, but did develop a stricture (blockage) in my left ureter approximately 3 months after my cystectomy. This is diagnosed via CT scanning - the stricture caused recurrent kidney infections & was solved by inserting a catheter tube / stent from said left kidney out into my stoma (through the left ureter).
Hopefully this won’t be the issue & the stoma was only blocked at exit temporarily.
Best wishes
Gareth
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007