2nd Maintenance Round of BCG completed!!

Hi Trevor, does your hospital take biopsies routinely even if the cystoscopy is clear? All mine have been done due to the dreaded red patches.

Love Ade xx

Hi Ade,

I don't have flexi cystcopies, just biopsies under GA each time. I've had 6 so far ( plus two TURBTs).

I've only had one cystcopy without being knocked out and that was my first one back in December 2022.

I've no Idea why this is different or even if it is different, although I don't really mind too much. My last one was 10th Jan and I should start my BCG again soon all being well.

I've had those pesky red patches due to BCG also.

I guess there isn't a one rule fits all scenario with cancer treatments.

Looking at my schedule, I should have two more under GA this year (April and July) then my check ups go to every six month's to follow my BCGs. Which will be welcome for sure.

Take care.

Trevor 

Well done Ade for completing 12, we are warned that the effects are accumulative but doesn’t make it any easier as it can get harder each time.

Thanks for sharing with us

That's exactly how I am Angela, I almost forget about bc, but it's just at the back of my mind. Hope all good with you at least we are in February now xx

Hi both

I'm coming to the end of my BCG induction (had no. 5 today) and reading about your experience of side effects. 

I too have noticed some tiredness and lethargy, sometimes just part of a day, sometimes nothing, sometimes feeling wiped out all day. I had a sore throat and cough for a couple of weeks at the start but that cleared up and hasn't returned. 

Did you feel continued side effects in the gaps between your courses or only during the weeks you were being treated? I'm looking at returning to work in a few weeks, and so I'll be having the rest of my course while working. 

Thanks!

Glad to hear you've completed maintenance Round 2 and hope your scope and next CT allow you a nice, relaxing break.
Your posts have been a huge help and encouragement to me.

Hi Mark, I'm happy to know that I have been a help to you ️ I am so grateful for this forum for all the support I receive, so I'm trying to pass on my experiences and positivity.  Hope you are well.

Love Ade xx