Blabber/prostate removal

Hi Engineer46,Welcome to our helpful supportive group.I’m sorry you face bladder and prostate removal but you will get plenty of help here to get you through.I’m sure the men will be along soon to share their experiences.I had my bladder out in 2019 and lead a full life with a stoma.Best wishes Jane 

Thank you it is the stoma  I was most concerned about.

@engineer46 I would not be too concerned. I have had my bag for life for a month, it’s working well, and I get a good nights sleep too with a night bag. The urinary diversion to a stoma is the most common way of dealing with urine, and the surgeons and nurses are very used to doing / managing them. You will probably be able to do almost everything you can do now with this arrangement. Leo

Thank you 

Is there anything in particular that is worrying you about the stoma ? 

That it will get infected and that it will be visible to others.

Hi Engineer46 

I have spoken with you before when you posted about this-obviously I’m a female so things are a little different in the waterworks department, but I’ve never had a single infection in 4.5 years after having bladder removal, and my bag is not visible to others. I hope that might reassure you a little?

Sarah xx

I’ve had mine over 5 years with no infections.You can’t see it under my clothes and no one would know I had one unless I told them.I think you have to learn to embrace living with one otherwise you may struggle.
I was in so much pain before and during cancer that the stoma has improved my life.I’m pain free and able to live a full life.Jane 

Thank that very reassuring 

I hope you will be reassured.It’s amazing how quickly you can adjust to living with a stoma.The stoma nurses should be able to teach you how to care for it and it soon becomes routine like teeth cleaning.It’s easy to empty when you are out and about and there is no hunting for a loo if you are desperate to go.At night you plug into a much larger night bag so you can sleep through without having to get up.It sounds more complicated than it is.You can go swimming with a stoma and it shouldn’t prevent you from doing anything.Best wishes Jane