Hello all you lovely people 
️
Today I had BCG number 9, so first maintenance round finished - WOOHOO!! My lovely Nurse, Ann , is wonderful and has supported me and lovely Hubby amazingly. I cried this morning once it was done. It is such a difficult journey that we are on and I thank God, and the NHS, that I can rely on seeing Ann at each appointment. I never imagined that I would be living this strange life of constant Hospital appointments and I have to admit that it is testing me. I'm having some counselling (through Bupa and Macmillan Cancer Support) and we have come to the conclusion that I struggle with loss of control of my life. Does anyone else feel like this?
I've got my PDD scan booked for 14th November under GA so if anything suspicious is seen biopsies can be taken during the procedure. Then onto maintenance round number 2 with BCG numbers 10, 11 and 12, then I'm halfway through the schedule. Trying very hard to stay in a positive mindset.
Sending love and positivity to everyone.
Love Ade ️ xx
Hi Frank
Thank you for your good wishes. I had my pre op today too. It was all over and done very quickly as all my previous blood tests and ECG are still in date. Got my PDD scan on 14th November after 9 BCG's.
I can honestly say I never expected to be in this situation. For weeks I was assured that these tumours would be low grade and I would just need monitoring then the Pathology came back as T1 G3 and here we are!! Now I'm praying that the BCG works and I can keep my bladder.
It's good to hear that you have now had 9 BCG, 3 more and we both get a longer break....woohoo 
Sending you all my best wishes for 25th November.
Love Ade ️ xx
Hi Angela, so sorry to hear this dose of BCG has made you unwell. I hope you feel better very soon ️ Ive had bladder pain since my last BCG, I just have to think that it's working 
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Love Ade xx
