Success - Finished First Maintenance Round of BCG

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Hello all you lovely people ️

Today I had BCG number 9, so first maintenance round finished - WOOHOO!! My lovely Nurse, Ann , is wonderful and has supported me and lovely Hubby amazingly. I cried this morning once it was done. It is such a difficult journey that we are on and I thank God, and the NHS, that I can rely on seeing Ann at each appointment. I never imagined that I would be living this strange life of constant Hospital appointments and I have to admit that it is testing me. I'm having some counselling (through Bupa and Macmillan Cancer Support) and we have come to the conclusion that I struggle with loss of control of my life. Does anyone else feel like this?

I've got my PDD scan booked for 14th November under GA so if anything suspicious is seen biopsies can be taken during the procedure. Then onto maintenance round number 2 with BCG numbers 10, 11 and 12, then I'm halfway through the schedule. Trying very hard to stay in a positive mindset.

Sending love and positivity to everyone.

Love Ade ️ xx

Frank123 9 months ago

Hi Ade, well done for completing the maintenance round, it’s a great feeling when a round of treatment is over.. Sounds like you are doing well and the counselling sessions will help you to stay positive. I completed three maintenance sessions in September and going for pre op appointment this morning for biopsy November 25th. I’m diagnosed G3T1 and CIS, so I really need a good result this time after nine BCG’s…..I was interested that you were initially told that because you had two tumours they were likely low grade because my consultant said the same to me after my first TURBT and it was completely wrong.
Frank

Frank

Halofan 9 months ago in reply to Frank123

Hi Frank, I had the same diagnosis as you. I have just completed number 12 BCG and so far it is working for me , no recurrence, just had the odd red patch. Just wanted to wish you good luck . take care.

Much love Angela x

Granny M 9 months ago in reply to Frank123

Hope all goes well for you on the 25th Frank. Love Lynn x

winkers60 9 months ago in reply to Frank123

Hi Frank,Best wishes for the 25th,I hope all goes well.Jane x

winkers60 9 months ago in reply to Halofan

Hi Angela,How are you today ?

Halofan 9 months ago in reply to winkers60

Hi Jane , go to be honest , last night was tough with pain ( not in bladder) in all of my muscles and little sleep. Its like the BCG brings back all my long covid symptoms . It will get better , its just sometimes my patience is tested and i end up emotional. Anyhow I am showered and warm sat in the garden for half an hour, so getting there. How is your shoulder ?

Much love Angela x

winkers60 9 months ago in reply to Halofan

Oh hugs Angela,I feel for you,I hope everything eases up soon..Shoulder aches a lot but wondering if it’s originating from the neck.Love Jane xx

Garviv 9 months ago in reply to Halofan

Angela, Angela, sounds like you have been in pain and discomfort since your BCG instillations. Hope you are feeling better soon. It sounds like your Covid symptoms are mirroring the after effects of your BCG treatment. You have the weekend to look forward to and remember the BCG Bacteria is attacking and killing the nasty cancer cells. Thinking of you. Garviv

Garviv

Granny M 9 months ago in reply to Halofan

Oh Angela, sorry you are feeling rough I hope ìt is short lived and you are back to normal very soon. Love Lynn x

Halofan 9 months ago in reply to Garviv

your good wishes have cheered me. that and watching my lovely team haha. you of course are right i am visualising an army of bcg bashing any sneaky cancer cells that my have the audacity to try and return to my bladder. woe betide haha

How was the turkish experience ?

Much love Angela x

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Success - Finished First Maintenance Round of BCG