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Hi I am new here but really keen on getting advice and or opinions. I was diagnosed with Cholangiocarcinoma in January after initial diagnosis of gallstones as I was jaundice. Sent to A&E and within 24 hours was told I had stage 4 terminal BDC, it's...
Excellent article in The Mail On Sunday 2nd February in their health section. I hope this is readable.
My partner (72 years old) of 26 years was diagnosed in 2021 with bile duct cancer. It was stage one. He had no symptoms at this time. His twin brother and 2 other brother had all passed away with different cancers. He asked if he could be checked as he...
Hi all, Unfortunately my beautiful Mum has been told that the Gem/Cis/Durv she’s had isn’t working anymore. She has been offered folfox and regorafenib as alternatives as 2nd and 3rd line treatments. Mum is incredibly worried about infection, has spent...
My mum has recently been diagnosed with inoperable bile duct cancer. Feels totally fine in and of herself. Starts chemo on Friday which they have told us is classed as palliative because the surgery to remove tumour is too risky so it has been deemed...
Hi everyone, My Mum was diagnosed last June with Hilar Cholangiocarcinoma and has completed 6/10 cycles of gem/cis/durv. Originally, scans showed that it had spread to a lymph but a mid treatment CT scan showed no evidence of this. Unfortunately...
Hi everyone, in September last year I was diagnosed with Intrahepatic cholangiocarcinoma bile duct stage 1. I have had a liver resection and was told the margins were clear and I have started adjuvant chemotherapy (capecitabine) which will last 6 months...
This charity offers support & has so much excellent information. There is a recent webinar you can watch giving information about trials from an eminent consultant in this field. Choose 'Patient Support' on the home page headings and scroll down to...
Hi everyone, my mum has recently been diagnosed with cholangiocarcinoma. She has just had a stent fitted in the bile duct and is feeling better after a few days. The doctors have referred her to Christie’s for Chemo and we are just waiting for the call...
Hi, I'm new to a forum of any kind! So please bare with me. My husband had 50% of his liver removed in mid September (left hemi hepatectomy) and has made a good recovery. He is a very young & active 76 year old. We felt we were very fortunate it was...
