Hi all,
Unfortunately my beautiful Mum has been told that the Gem/Cis/Durv she’s had isn’t working anymore. She has been offered folfox and regorafenib as alternatives as 2nd and 3rd line treatments. Mum is incredibly worried about infection, has spent 5 of the past 11 months fighting them in hospital, and now thinks that quality of life over quantity is the way she would like to go. I was wondering if anyone has had any experiences with either or both of these treatments that I could pass on. I’m frightened of what the future holds and would totally respect her decision not to take up the offer of further treatment should she choose that option, but I’d love her to hear so positive stories if possible. It’s just all so incredibly sad, she’s not really ready to leave us, but I think she’s finding the fight hard.
Sending so much love and light to everyone going through this
Hello,
I'm sorry I can't offer any advice as I have no knowledge of these treatments but I am wondering if you have looked at the Cholangiocarcinoma Support Facebook page? Lot's of posts on there of people asking these sort of questions with lots of support. It's not everyone's cup of tea & there are some sad posts but I thought I would mention it.
Your Mum sounds like an incredibly brave lady x
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