Hello - any experiences of FOLFOX pump disconnection and flush at home?

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Hi, my Husband has been living with Stage 4 Cholangiocarinoma since 2018 when Lung mets were discovered a year on from a Liver resection. He is currently waiting to start 8th line treatment of FOLFOX. Trials for targeted treatment as well as good old Cis/Gem (no immune that wasn't around when he had first line) have got him 7 years down the road and we hope with rebellious rope that Folfox will knock the lung tumours back to get us that bit further along. 

Keen to hear if anyone has experience or been permitted to do the FOLFOX pump disconnection and flush at home as AMMF guidance suggests may be possible? 

  • Hi,  I'm sorry I can't help with your question.  If you have no response, I am just wondering as you mention AMMF have you also posted on their Facebook page?  My husband had a resection 16 months ago, it's so encouraging to read how well your husband has fought against this disease.  Keep up that rebellion!  Wishing you both well.

  • Hi CillaJane - thanks so much for the reply., Yes I have posted FB page I am a regular there. He has indeed done amazingly well living with this, we think of out this way. Hope that your husband's liver resection was a success - xx 

  • Yes thank you, all going well so far Fingers crossed

  • Hi there, 

    I have just started Folfox and my husband was shown how to disconnect the infusion bottle, we were sent home with a big yellow bin to dispose of the bottle once empty.

    We were also directed to a tutorial on YouTube on the Weston Park Sheffield patient portal showing step by step how to disconnect the infusion bottle.

    Sorry I can't help further but it was really straightforward.

    Take care Jayne

  • Hi Jayne thanks for confirming, the fact someone somewhere recently has been allowed to do at home is a great help. Fingers crossed they will let me do it for Hubby. Hope Folfox does some business for you.x 

  • No worries 

    Fingers crossed you will be able to disconnect this at home for your hubby.

    I really hope Folfox does the business for me too!

    Thank you and take care, 

    Keep me posted