Hi everyone, New here and very recently diagnosed with anal cancer, more specifically squamous cell carcinoma.
Why does it take so long to get an appointment with a GP to obtain a diagnosis of what I initially thought was a severe haemorrhoid that just refused to respond to over the counter medicines? Once in with the GP I was referred to my local hospital with an appointment just 4 days later, having scans, blood tests, more scans etc., resulting in the diagnosis being confirmed on the 23rd of this month.
I'm a huge fan of roller coasters but not the emotional kind, and this has been of heck of a roller coaster ride!
I have my first meeting with oncology team in less than a week from now, with a plan for chemoradiation treatment to begin in April after I return from what I'm sure will be a welcome break in the sun for two weeks.
I have a HUGE support network in my local hospital for which I am already immensely grateful.
I'm already feeling relieved knowing what the problem is and that it is treatable and I'm feeling very positive and looking forward to the future with plans to (maybe) return to Disneyworld in Florida again (yeah, I'm just a big kid really that refused to grow old gracefully) and at 66 years old this is the first major health problem I've had.
Anyway, I had intended this post to be brief and just introduce myself, instead its beginning to look my life story! If you've taken the time and the effort to read this far, well done and thank you for allowing me to have a 'wee-rant', obviously I'll keep you posted as the treatment goes on and let those that are interested how things go, no doubt I will have lots of questions as treatment progresses.
Thanks again everyone.
Morning Papabear and welcome.
Yes, it is quite amazing how many of us here took ages to get a diagnosis. I suppose GPs don't come across AC that often, but in amongst all the piles that is the kind of thing a good GP should be alert about.
However, now you are safely in the hands of the people who know what they're doing. I suggest when you get back from that lovely holiday you have a read around this forum and you'll get some idea of the things you should have to help you on your way.
You may want to start soon with moisturising your undercarriage as that will take the most damage from the radiotherapy. Something gentle and unscented like E45 or Aveeno seem to be well thought-of amongst us. (Not on the days you have appointments in case they want to scan you). The radiotherapists will give you some proper cream once you start, so don't buy anything specialist or medical until you've seem them.
Enjoy your break in the sun and come back and chat with us when you can. Good luck x
Thank you, I'll bear that in mind, one of the nurses on the colorectal team has suggested using bepanthen (nappy rash ointment) to help relieve soreness caused by the area being constantly moist from the bleeding, not sure if this is just a barrier cream or if its also a moisturiser, more research to begin in earnest.
I think Bepanthen or Sudocrem - another favourite - are great for use when things become a bit sore; they are good but a bit thick to use on normal skin as a moisturiser. I found it was like severe sunburn with some blistering. No bleeding.
Wait and see what others here suggest - you will get some good recommendations. x
Hello Papabear
A warm welcome to the forum, although I am sorry you had to be here at all. But you have come to the right place, all of us have been or are going through the treatment and really do know what it is like. And don't worry at all about ANY sort of rant (not that I would ever describe it as such) we all come on here to tell our stories and that includes frustrations too. I am relieved that your GP took action quickly and that you have such a responsive hospital.
We have lots of tips and coping strategies we can share, so please come back when you know your exact treatment plan. We will all be thinking of you when you have your meeting with the oncologist.
In the meantime go and enjoy your time in the sun and then start making plans for Disney World. And please don't grow old gracefully, being old is so over-rated anyway!
Big hug
Irene xx
Afternoon Papabear
Good to hear you have your diagnosis and a supportive team at your hospital.
This cancer is very treatable, so plan your holidays and enjoy making new memories. The treatment will 'flyby' and life will return to new normal.
Enjoy your fun in the sun.
Ally xx
Hi there Papabear & another warm welcome from me to the MacMillan Online Community although I’m really sorry to hear of your recent diagnosis.
You sound in a good frame of mind & ready to take the bull by the horns so to speak.
I’m really pleased to hear also that you’ve got faith in & great support at your hospital, this is really important.
We all get to know each other quite well quite quickly here, nature of the beast I suppose, so a good introduction is always welcomed & we’re always here if you fancy a chat or a bit of a moan on days when you’re not feeling so great, we’re here to support you however we can.
Have a lovely break away, enjoy the sun & keep Florida in your sights.
Nicola
Whatever cancer throws your way, we’re right there with you.
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