Panic

Hi Linz17 did they give any other info at all? Bev x

Hi Linz17 I do think they should have explained why you need to go in it’s not fair to do this to you. I am wondering why you would be told to go to the radiotherapy department? Perhaps it’s a last minute tweak to the treatment plan and they need you to sign consent forms? Bev x

She just said she had a message from dr Halsans (can’t remember how to spell his name ) and he wanted to see me and John tomorrow morning at the radiotherapy department I’m shaking like a leaf!! Is it to do with the pet scan results I’ve no idea Xxx 

Hi Linz17 yes it’s Dr Haston, it could be a change to your treatment plan after viewing the PET scan results or something they need to check into before your treatment starts. This happened to me, I had a start date for treatment all set and my planning scan showed an enlarged lymph node in the groin. I had to have two biopsies as if it had been cancerous then they would have had to have tweaked the dose of radiation.  I just think they could have given you a bit more information rather than leaving you like this. Bev xx

I’m hoping it’s something along those lines especially because they said the radiotherapy unit!! I can see the urgency because my treatment starts Monday it’s just worried me how they said John aswell . I though if it was bad the nurse might of phoned me before hand . Just cant shut off now!! Xxxx 

I also have enlarged lymph nodes 

Awww Linz17 I totally agree with Bev, at this stage I don’t think this should have been dropped on you with no explanation. Were you ever assigned a specialist nurse or colorectal nurse? I rang the nurse that sat in with me at my diagnosis a couple of times with questions when I received an unexpected appointment in the early days & she was able to explain things to me which in turn eased my anxiety. Hopefully it’ll just be a tweak to your treatment plan with it being in the radiotherapy department but I completely understand your worry. 

Nicola

Hi Linz17 maybe it’s something to do with the lymph node sizing, I know this can change from scan to scan. What a nightmare for you of course you’re going to be worried sick. It’s a terrible position to be left in Bev xx

Yeah I have a nurse it turns out I know her and her family . I tried to ring her immediately but I’ve not been able to get hold of her .. I did think if there was anything to worry about she would of let me know . I’ve only met my oncologist once so I am trying to convince myself it’s just to tweak things .. go through things before Monday but as you can imagine I’m just thinking the worst possible scenario Xxxx 

That’s completely natural Linz17 you just have to somehow get through tonight and all this will be resolved tomorrow. I hope you’re going in tomorrow morning, so less time to wait Bev xx