Recovery symptoms

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Hi all, I have not posted before but I have read a lot of useful information during diagnosis and treatment. Bit of background, I was being treated for haemorrhoids or a fissure, after months of pain and not getting anywhere, I went private and during a routine operation to band suspected Haemorrhoids, a rouge ulcer was found, removed and sent for tests. Then it was confirmed it was anal cancer. I finished my treatment of 23 days of Chemoradiiation on 31st Dec 2025, the next two weeks were the worst (but I don’t need to explain that to you all as we have all been there). Once I healed I was then jumping for joy and happy to the point of being annoying. Roll on to now and I don’t even recognise myself anymore. I feel ill constantly, my body just aches and I am tired and don’t have any strength, I thought I would be jumping around making the most of life, instead I’m just falling into depression. I used to go to the gym everyday before, now a dog walk is enough. Just had my 12 week scans but my appointment isn’t for another 3 weeks for the results. Just wondering if anyone else has had the aches, can only describe it as feeling like the blood running through your body is poison, (weird explanation I know).

and how do you get over the guilt of not making every second count when you’re too bloody knackered to do anything? 

or am I just feeling sorry for myself. 
sorry for the long post

carolyn

  • Hi..

    Well done on getting through the treatment.  

    Please be kind to yourself.. you have gone through so much.

    Each person is diffrent for recovery..

    Im a year down the line now and most days im ok..going to gym.. going for walks.. having  day out with my hubby..

    But some days im so tired and bloated..

    I know its easier said than done but try to go to gym or get some fresh air daily..and let yourself rest when ou need rest..its still really early days fir your recovery..

    We are all here for you Heart️ 

    Squeak

  • Hi Lawton2ef539,

    Welcome to the forum and well done on completing your treatment in December.

     You are most definitely not feeling sorry for yourself. I think there is a real feeling of elation on finishing treatment, then healing up and we expect to bounce straight back. I know that some do , which is wonderful but for others it takes longer.

    Your body (and mind) have been through a lot and I know that the tiredness post radiotherapy can really drag on and can be so frustrating. Your body is probably still healing internally.

    Its good to keep moving if you can even if it’s walks rather than the more full on things at the moment.

    Its also a really difficult time waiting for those first scan results. 

    It will get better, honestly and don’t be too hard on yourself. 

    Sending hugs xx

  • Hi  You are not feeling sorry for yourself and so what if you are you are allowed youve been through a lot. Cancer isnt just the physical its mental as well but i dont think that hits most until after as you are on auto pilot during treatment just getting through each day. Its still early days for you, i finished nov 24 and still have tired days, not back to pre treatment strength at the gym, have tight hips and the occasional accident but things are improving and my oncologist tells me its early days and hes happy, im just impatient. Just go at your pace you will get there. I would also suggest asking about some therapy, its helpful to some. Sending hugs. Xx

  • Thank you for your reply, I guess I need to realise I’m not going to jump back to who I was before and I’m struggling with that. 
    thank you for your kind words Blush

  • Thank you, it’s good to hear from other people who have been through the same or similar. Seems I need more patience and kindness to myself, which I find hard. 
    thank you for your kind words x

  • Thank you. I am going to get in touch with the care team tomorrow to organise someone to talk to. 
    I am a typically impatient and a planner, but didn’t plan for feeling like this. I am so glad I bit the bullet and posted, everyone who has replied has made me feel so much better and less alone in my head

  • Never feel alone, we are all here for you. Xx

  • Hello  

    We all hear you.  And most importantly, please don't apologise for posting about what you are going through, this really is your safe place and no subject is off-limits.  We get to the end of treatment and expect our lives to pick up exactly where we left them before, but often there is a new normal to come to terms with after what is a gruelling treatment. 

    But please remember, it is very early days for you.  The radiotherapy carries on working for months after treatment ends and this could be contributing to your symptoms and fatigue.  You are doing so well getting out with your dog and getting exercise even though you haven't made it back to the gym yet.  Just give it time.  And when you see your oncologist, it is always a good idea to mention what you are going through too.

    We will all be thinking of you when you go for your appointment, please come back and let us know how you get on.

    Gentle hug, Carolyn

    Irene xx

  • Thank you for your reply, I feel I am in the right place now with all these kind people and advice

  • Hi Carolyn ( ),

    Another warm welcome from me & congratulations on completing your treatment.

    Over the last few months your body has been battered (inside & out) by 2 extremely toxic treatments. The radiotherapy continues doing its thing for several weeks after that last session so the way you’re feeling right now doesn’t surprise me unfortunately. It sounds very typical of the fatigue brought on by the treatment. As Squeak has said be kind to yourself & rest when you need to for now, this will pass, hopefully you should gradually feel more energised. 

    There’s nothing wrong with feeling sorry for yourself considering what you’ve been through, it’s tough & recovery looks a little different for us all. 

    If you’re feeling down please speak with someone, there’s the helpline here at MacMillan, if you’re lucky enough to have a Maggies centre close by they offer counselling services or if all else fails speak to your treating team or GP. 

    I see you have a dog to walk, mine kept me sane in my recovery, I remember when I first began walking her again, it was a struggle & the walks were short by comparison to before my treatment but my stamina gradually improved over time as will yours. 

    Just a thought, have you had your bloods checked recently? if not it might be worth getting them done just to check they’ve recovered ok since you finished treatment.

    Hope you start feeling better soon.

    Nicola