A year on

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Hey guys....

Been a while since I've been on here. I had intended to stay on board and do updates and offer support for newcomers after all the support I received here myself last year.

Honestly? I've no excuse, other than life has just been carrying on after treatment and actually it felt a lot mentally to keep on talking about it all. I guess avoidance has felt easier for a while.

But now my partner has just been diagnosed with acute myeloid leukaemia. It's such a shock and I'm still going through all the regular scans and checks myself. Feels a whole lot right now! Had to leave him behind at St Barts yesterday for 6 months of intensive chemotherapy. He will only be allowed home for a week at a time inbetween each 4 week cycle.

The leukaemia forums seem so inactive compared to my experience on here with this particular forum. 

Anyway. Some of you may remember me. Things are looking as good as they can for my own recovery atm, so I hope that's reassuring for others here who are at the start, middle or end of treatment. 

Will have a little scroll through recent posts to catch up at least a bit and any questions from anyone who might need some support right now are 100% welcome too. I'm no oracle, but I'm out the other side of the treatment for anal cancer now and into the check up stages. 

Jenna 

  • Hi Jenna

    So nice to hear from you again, I’m really sorry to hear about your partner that must be devastating news for you both. I really do understand your decision to stay away from the forum, no need to explain why at all it’s such a challenge having the diagnosis and then going through the treatment you need to recovery mentally as well as physically so I don’t think you need an excuse.

    So glad to hear that things are looking as good as they can be for your recovery at present, seem to remember you’re on a similar time frame with treatment to myself. As you can see this forum remains very active and there is still lots of support being offered to the newcomers by all the wonderful people on here. Shame the Leukaemia forum is so inactive but maybe someone will come along with some suggestion for support elsewhere.

    Big hugs and wishing you both all the best

    Monty xx

  • Hi  , of course we remember you & it’s amazing to hear that you’re doing well in your recovery but please don’t think you’re doing anyone a disservice by stepping away, you have to do what is beneficial to your own wellbeing & sometimes that means not having a constant reminder of what’s been happening so please don’t feel you need to explain your absence. 

    I’m also so sorry to learn of your partner’s recent diagnosis, what an awful time for you both. I’m sure yesterday was extremely challenging for you both knowing you’ve got this 6 months of treatment ahead, you know only too well about both the physical & emotional challenges that cancer treatments present but what do you do? You don’t really have a choice other than to deal with it do you? Just know we’re here & anything we can do to help support you we will. 

    I'm surprised that the leukaemia forum isn’t very active, maybe you could also join the Family and friends forum ? Just an idea as there will be lots of people there supporting loved ones through their treatment etc. 

    Please let us know if there’s anything we can do to help & I know it’s a lot right now but remember to look after yourself too. 

    Nicola

  • Hello  

    I am so sorry - whilst you have been picking yourself up and trying to get your life back on an even keel (and no need to apologise for your absence whilst doing that) you are back on the rollercoaster again with your partner.  This is such a major health issue for you both to process and having six months of intensive treatment is a lot for you both to cope with.

    It is a pity that the forums don't seem very active but I see Nicola has signposted you to another forum which may help.  In the meantime I am really pleased that everything seems to be clear with you and I hope you check-ups continue to be clear.

    And you take care too, it is so easy to forget yourself when you are so worried about your partner.  You are always welcome back here to share.

    Big hug, 

    Irene xx