To those with painful hips part three...

I've got everything crossed for you Irene xx

This sounds hopeful Irene75359 !

Regarding the conversation with your electrophysiologist about the procedure to stop the formation of blood clots you don’t know these things unless you ask do you? 

I really hope your MSK clinician re-evaluates the decision for the extracorporeal shock wave therapy. 

I too have news, my MRI results are in! Although I can’t see the Dr to go through them properly until the 6th of May. 

The results are on my NHS app & I had a physio appointment yesterday morning so I showed them to him. He deciphered them a little.

From what I understand from the report my GP had asked that I be checked for metastatic cancer also which he didn’t mention as a concern to me but I suppose in light of my history it was a go to. I have ‘no obvious fractures’, I’ve a couple of minor bulging disks, chronic inflammation around my greater trochanter, I also have bursitis, there’s chronic inflammation throughout my lumbar spine especially around the L4 & L5, my hips although showing some alterations to the bone surfaces are stable & aren't aren’t a concern in themselves mechanically but as with my spine there’s chronic inflammation throughout both hips.

My physio has advised me to ask for a blood test to test for AS (ankylosing spondylitis) & for a possible referral to rheumatology as he suspects I could have one of many inflammatory arthritis conditions. 

I’ve now embarked on an anti-inflammatory diet to see if that helps, lots of whole foods, nuts, seeds & fish, I’ll update if I begin developing gills 

Keep us updated Irene75359 , I’m following with interest.

Nicola 

This sounds positive Irene75359 have everything crossed for you. Xx

Hi Nikki65 Hope the new diet helps. Xx

Hello Nikki65 

Oh Nicola, so you have chronic inflammation everywhere.  No wonder you are in such pain.  I very much hope that all the tests you may have done is inflammation that we know/live in hope can be treated.  A very cursory look at ChatGPT says the shockwave therapy can be useful in treating L4 & L5 but mainly for inflammation, and it all depends on what your follow-up appointment and investigations reveal.

Fingers crossed the diet helps

Irene xx

Hi again Irene75359 , I have a family history of both osteoarthritis & rheumatoid arthritis on my maternal side, both of my mums sisters had rheumatoid, her elder sister since she was in her early 30’s & mum’s twin sister later in her life, I was tested some years ago as part of a wider blood screening & the test came back negative but I think this blood test for AS is different & quite specific. Over the last few weeks I’ve had a very sore arm also & the GP said it’s most likely repetitive strain injury but something similar has just occurred around my knee also & my physio has said these are all areas where tendons attach & inflammation in these areas apparently is a typical symptom of AS. 

I was really grateful that nothing more sinister was found but the quest continues as you know only too well. 

Nicola 

Thanks Bungle1 , it’s clean & removes all sugar & additives so I’m hopeful that it should reduce my inflammation & could help with a couple of other things too fingers crossed. 

Hello Nicola

Very good that you now have a better idea of what is causing this terrible pain and self advocating has got you to this point. I can't imagine how frustrating it is when the medical profession don't join up the dots and take prompt action.

I have mentioned before that my 'partner in crime' has ongoing pain in hips, knees and foot. Also a history of severe arthritis on his mum's side. He is working with a sports physio and after scans inflamation and bursar's are the underlying cause. We are keenly watching your journeys and hoping that shockwave treatment is available in Bulgaria. Keeping everything crossed for good results.

Hope you don't mind me throwing a couple of things into the anti inflammatory list. Before I was diagnosed with cancer I was diagnosed with severe inflammation of the anus, so bad they could not insert the camera or take full biopsies. Anyway I immediately cut out seed oils, they are in everything. I cook with olive oil, butter and lard only. I also take lemon, ginger, tumeric and black pepper shots each morning. I add organic apple cider vinegar. I also use more black pepper and tumeric in cooking and smoothies. After treatment they were able to do a colonoscopy and take samples, proctitis but, improvement. Maybe the chemo radiation and diet helped.

Keep us updated on your progress.

Ally xx

Hi Ally,

I’m up for any advice/tips, all are greatly received.

I haven’t used seed oils in years now, I use only extra virgin olive oil or avocado oil on occasion, I’ve also been looking into making my own anti inflammatory shots. I’m lucky in the fact that I love most fish, veg & salads, I quite like fermented foods too, a guy I work with makes his own kimchi so thats on my list to try also. I used to drink raw goats milk kefir every day so I should get back to that too. I’ve started having 2 Brazil nuts as soon as I get up in the morning, they’re high in selenium & are highly anti inflammatory & great for heart & brain health & I have a couple of walnuts & some mixed seeds on my Greek yogurt.

I went full keto when I received my diagnosis & ate like that for quite a while, I’ve tried a few times to go back to it but find it so restrictive now, hopefully this anti inflammatory/mediterranean diet is a happy medium that I will be able to stick to & will have the desired affects. 

Nicola 

Totally agree about the Mediterranean style diet and I also love goat kefir and cheese.

Check any bought foods for seed oils, biscuits, cakes breads and just about anything. It's shocking how they use this industrial crap.

No extremes just a nice balance sounds perfect for long term.

Ally