Hey folks!
Sorry I've not posted recently but I've been updating family and workmates.
Started my treatment on Monday with IV chemo (can't remember the name, sorry) and was given what I reckon was a huge supply of Capecitabine. Mind you, when you I into account my dosage ... 3*500mg plus 2*150mg twice a day ... maybe the supply ain't THAT big? Radiotherapy every weekday too.
My final treatment this week (day 5) isn't for another 30 mins so I'm letting my bladder fill up. Yes ... I got told off on Mon & Tue!
You may recall that I'm staying "on site" for the duration. Ensuite room in old nurses' quarters. Cereal & bread for toast in the morning and fridge stocked with fresh sandwiches & yogurts etc. Plus we get a £5 voucher to use in the hospital restaurants. There's one in the basement where I'm "living" but that closes at lunchtime, which means a 10min walk to the big restaurant in the hospital.
I really hope that everything is going OK for "you lot".
Hi Laura.
I've got 28 sessions of radiotherapy alongside a course of chemotherapy on my "radio" days. Five down ... 23 to go!
I was given the choice of dropping my radio session on Monday, as I can't stay "on site" because of the Bank Hol. But my sister's fiancé can chauffeur me. It will mean another day of the 28 to cross off & I'll be messing up HIS Bank Hol ... win/win! Bitter? Moi? 
Just picked up a parcel from Post Office & realised how tired I am!
Hope all OK with you?
Hi ,
Good to hear you’re almost 1 week into your treatment, the time seriously will fly when you’re ticking off those days on your treatment schedule.
Sounds like a good set-up at your hospital for anyone that requires being an in-patient without being stuck on an actual ward!
The amount of capecitabine you’ve been given although it looks a lot it should be exact for your treatment plan.
Also the fatigue, related to both the radiotherapy & chemotherapy is a biggy & the best advice I could give is don’t try & push through it, rest when you need to rest, sleep when you need to sleep, your energy will return once this is all over & you’re healed.
Good luck for the coming week, sounds as though you’re coping well.
Nicola
Hi ,
Just a little heads up about the toilet wipes, if you find they sting as your skin gets sore try water wipes, to be found in the baby section in the supermarket by the baby wipes, they are literally 99% water & I found them to be the only wipe that didn’t sting.
Also do you get your E45 (Aqueous cream does the same job) on prescription? If not maybe ask your GP to put it on repeat for you, I still use Aqueous cream to wash with now, my radiotherapy girls advised to use it when I got radiation cystitis in week 2, it helps the skin during treatment as it becomes sensitive & keeps skin supple & well moisturised afterwards.
Nicola
