Painful hips, buttocks, lower back and pins and needles in hands and feet!

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Hi all,

I am really getting fed up of feeling the way I do. I was referred by my GP in January to CMATS due to xray identified bilateral degenerative (wear and tear) to hips. I am approaching 47 years of age. 
Today I was seen in cmats clinic. I couldn’t believe what the Dr suggested this pain was; fibromyalgia of everything. I wanted to cry as nobody seems to have a clue. Yes I agree the symptoms are very similar but as I told him I wasn’t convinced it was fibromyalgia as I was perfectly fine prior to chemoradiation. I walked miles, I jogged, and rode horses. I can no longer jog or horse ride. Walking up stairs I am in total agony.

Sitting in the car after the appointment, I just couldn’t believe what the Dr said therefore, I phoned the Christie hospital in Manchester. I am in North Wales and not getting anywhere and as they are the specialists in anal cancer I gave them a call for information and they informed me they have a late side effects clinic.

So I had to call the oncology team that I have been discharged from to ask if they will refer me to the Christie. I am crossing everything that they will. This is having a negative impact on my quality of life and getting me down. 

The Dr is referring me for a nerve conduction test. He tested all reflexes today but just said I was very flexible (I do have hyper mobility) but didn’t mention the reflexes.


x

  • Hello  

    Many of us, young and old, are searching for answers to hip pain and at 47, I am really so sorry that you have this. There is an ongoing thread where those of us suffering are detailing our search for proper diagnosis and treatment following pelvic radiotherapyTo those with painful hips... 

    If it is possible, I would follow up with the late side effects clinic in the Christie; they should definitely be more aware of the side effects of pelvic radiotherapy and can hopefully signpost you to further treatment.

    You really are having a hard time of it and my heart goes out to you.

    Please do follow this up with the Christie and share what happens.

    Big hug

    Irene xx