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My salivary cancer was wrapped round my voice box. I was told I needed a laynregectmony. I refused. I went for a second opinion at Queens in brimingham. They lazer resectioned. Still have my voice. Always get a second opinion if you are not happy with...
Hi there I'm new here and just want to see wat is wat I have adrenal cancer acc they said n they have just removed a 1meter long tumour from my body aswell as having a baby 7 week early due to the cancer pushing her out literally and the social services...
Hi fellow adenoid cystic carcinoma patients, Are you going to be joining the next patient gathering on Saturday May 10th? It's in Sheffield and on zoom too. I am going and really hope to see/meet some of you there. Our 2025 Events (gatherings and webinars...
Hi all oPsting here as I am looking for any positive stories of others who have been diagnosed with this condition. I've been dealing with the NHS in the UK and it's taken just short of a year to be diagnosed. They originally diagnosed me with Lymphomatic...
Hi Everyone l am new here and other than my young children I do not have anyone except my parents I can’t really talk to them much….! Well. At all. I’d just love to be to talk abut similar things. this is a scary journey on your own.
After one minute being told I don't have ACC metastases to the lungs to being told I have , my head is all over the place. My hospital should have referred me to H&N clinic but sent me to another lung specialist who was not given my biopsy results only...
Hi all I was diagnosed with Cancer in March this year. Being on the pathway has been a whirlwind of scans, appointments etc. PET-CT scan picked up a couple of hot spots. I had an enlarged lymph node removed last week to check for Lymphoma. My surgery...
Hi Everyone, There is a gathering for all patients and carers affected by ACC and other salivary gland cancers in October in London. I am an acc patient and there are going to be other patients and carers there. It's a chance to meet people in person...
Hi I was told in October last year I had a lump in my saliva gland, After lots of scans biopsies and an operation to remove it which they couldn't do because of the risk of my face bring paralised, I have been told its a rare cancer called basal cell...
After a 11 year battle with ACC my 30year old daughter is not doing well. After 7 years of bracethrephy treating her lung mets she now has trouble breathing. She's on a O2 concentrator at 8 LPM. She has pulmonary hypertension as a result of her damaged...
