Daughters journey with ACC

  • 1 reply
  • 10 subscribers

After a 11 year battle with ACC my 30year old daughter is not doing well.
After 7 years of bracethrephy treating her lung mets she now has trouble breathing.
She's on a O2 concentrator at 8 LPM. She has pulmonary hypertension as a result of her damaged lungs.
Her o2 levels and blood pressure are fairly good however the last few weeks she’s unable to sleep making her afraid, dizzy, and most of the tine incorrent. Her doctors have her on a madrid of drugs but are reluctant to prescribe any sleep medicine. She cannot tolerate a CPAP machine. Any ideas that can help her sleep would be greatly appreciated.

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read about the difficulty your daughter is having sleeping and it must be very stressful for you both.
    I'm not a member of this forum but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies, it would be great if you could put something about your daughter's diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"