Hi all
oPsting here as I am looking for any positive stories of others who have been diagnosed with this condition.
I've been dealing with the NHS in the UK and it's taken just short of a year to be diagnosed. They originally diagnosed me with Lymphomatic Malformation of the parotid gland. Unfortunately the ultrasound team decided against a biopsy I'm November 2023 and this was only recently done.
I was given the diagnosis today and have surgery in a month with radiation to follow.
I'm not too sure what I am looking for here but would greatly appreciate if anyone who has been through this can let me know how they are doing. No idea how aggressive this is, but it's slow growing.
I'm a 38 yr old male, turning 39 next week. My life feels a mess. Our landlord is selling our flat, I was assaulted Monday and have a broken nose... I'm struggling to cope
Thanks and apologies of this is all over the place.
Hi Nik_M
Sorry to hear about everything you have been going through as if you needed all that on top of the diagnosis. I can certainly relate on the extended period to diagnosis even though my wife's cancer is very different but also classed as rare.
<<hugs>>
Steve
