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Hi there. I had the most devastating news yesterday that the NHS are unable to commission a 2nd stem cell transplant for me as I relapsed 9 months after the first one. This is despite being well and fit and gaining remission via Gilteritinib. I am at...
I am starting treatment on Monday 8th September, for AML. Can anybody else give me any idea how successful Azacitidine chemotherapy can be? When you get a prognosis of weeks to months it is very scary. Any advice welcomed.
Hello all, My name is Mike, I am a brand new member, I am 80 years old and I was diagnosed on Thursday with AML. I just can't stop shaking and don't know what to expect, The consultant said she is meeting with her team and will formulate a plan, and...
I am an 80 year old man and was diagnosed with AML about 2years ago Sep 2023.. Having survived Advanced and aggressive prostate cancer in 2017 this came as a great shock to my wife and I. However after 12 cycles of light touch chemotherapy (I was too...
Help help help needed. How can I support my son and his family post stem cell transplant(AML Flit 8) : he's survived so far- 4months- but is so grumpy that he is pushing his young family away. He says he's not grumpy but he is & its affecting his wife...
Morning All i have recently been diagnosed with AMl I am 56. It’s been liked a whirlwind. I am on day 8 of intensive chemo and hospitalised. any support help or advise would be appreciated many thanks
Afternoon, I'm a mum of 3, 42 Yr, usually very fit and active, gym, yoga, vegan.... Diagnosed with AML Leukemia 2 weeks ago.. Still awaiting treatment plan. Have been told favourable risk, although I don't quite understand anything atm. I'm very worried...
Hi, I’m new here and I guess just wanting to speak to people who understand all this. My dad was diagnosed with CLL, via a routine blood test, in 2014 when he was in his early 60s. He was fit and active and put on Watch and Wait. Then he stopped...
hi everyone i had AML.15.years ago..some chemo left me with terrible rectal pain which has never left. 10 operations, both private and under the nhs since 2009, and im still left with increased rectal pressure the more i stand up. it goes...
Hi x I’m new to this just want to say hello to everyone for now
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