I am an 80 year old man and was diagnosed with AML about 2years ago Sep 2023.. Having survived Advanced and aggressive prostate cancer in 2017 this came as a great shock to my wife and I. However after 12 cycles of light touch chemotherapy (I was too old for bone marrow transplant which is the only potential cure); Azacitidine by injection and Venetoclax tablets I am now in complete remission; although with residual MDS. My white, platelets and neutrophils having not returned to normal.
My consultant has now given me a difficult choice. I can either continue the Chemo therapy with eight weeks between cycles; managing the inevitable infections and bleeds, or stop treatment for best quality of life. In either case the AML will almost certainly return at which time it might be difficult (impossible?) to treat.
Anyone on here faced a similar dilemma??
Hi RogerS2678e7 and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I keep an eye on our various Blood Cancer groups.
I don’t have Acute Myeloid Leukaemia (AML) but I have been in my journey with 2 types of rare Non Hodgkin’s Lymphoma’s for over 25 years.
Let’s look for group members to pick up on your post and get back to you. You can also click on the main ‘AML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups and the one I attend does have a few people with AML in it so worth checking.
Always around to help more or just to chat
