Help help help needed.
How can I support my son and his family post stem cell transplant(AML Flit 8) : he's survived so far- 4months- but is so grumpy that he is pushing his young family away. He says he's not grumpy but he is & its affecting his wife and 3 kids (12,10,8)
The children can't understand why daddy is grumpy with them when they haven't done anything. They need help. He needs help but how to help if he doesn't recognise that he is being grumpy and not nice to be around?
anyone else had this experience?
Hi AshtonCourt41fa1e and welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I keep an eye on our various Blood Cancer groups.
I don’t have Acute Myeloid Leukaemia (AML) but I have been in my journey with 2 rare type of Non Hodgkin’s Lymphoma's for over 25 years so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well…… especially as I have had 2 Allograft (donor) Stem Cell Transplants (SCT) (June 2014 then Oct 2015)
Navigating a SCT is a very challenging experience and for some it throws up significant mental and physical challenges….. and unfortunately some people just don’t know how to deal with them….. and this often results in their nearest and dearest suffering.
How is he physically?
What type of SCT did he have….. using his own Stem Cells or Cells from a donor?
4 months post SCT is very early in the process as his new immune system is still growing.
Been through something kinda similar with my brother after his transplant. The meds, fatigue and just the whole recovery mess can really mess with mood, even if they don’t see it themselves. What helped a bit was lowering the pressure on him and finding small ways the kids could “help” without it feeling like a burden (drawing him cards, short visits, watching a show together). Gave them some sense that dad still wanted them around. Also, his wife found a support group super useful for coping. It’s tough on everyone, but it does get better with time.
Thanks that's encouraging. Just to know someone else has faced these problems and found a way through. Do you know where his wife found the support group? We don't know where to start looking.
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