acute myloid left me with rectal pain..!

Hi again daley52 and sorry to read about the challenges you are having.

Lats see if there are any group members who have had similar experiences as yourself.

I had significant Radiotherapy for my 2 types of T-Cell NHLs and have permanent damage to my rectum and anus but it’s manageable and on the whole does not affect my daily life apart from long distances in a car or plane.

To widen your set h for others who have had a similar journey you may want to check out Leukaemia Care UK who run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444

hi Mike

wow my journey was just a one stop bus trip to your 3 month world tour.

you poor soul must be still shaking aftervwhat you endured. im notvashamed to say i tried an intentional O.D. ladt year as the continual awake time just got too much, but having my stoma meant the meds didnt go into my lower body and were quickly passed into my pouch! so for now a greater power has decided to keep me here for a bit longer.. 

i would dearly love to be able to stand and walk without this constant uncomfortable uncontrollable problem.. like yourself- we both fought the little C to survive.. . at the time my child was only 6, but is now fully grown so not as dependant... my thought process at the moment is to continue to try and find surgery - panprocolectomy i feel would be the next option, but after being passed from one consultant to another over 3 hospital trusts, i feel continuity to be the most irritating repetative problem.

i appreciate your feedback Sir.  good luck on your next coach stop..

kindest regards.

DW. 

Every journey is rough and at times it’s the post treatment leftover’s that can be more of a challenge.

I also Volunteer for Lymphoma Action, the UK’s main Lymphoma Charity and Leukaemia Care UK is a partner Charity we often work along side so it would be worth checking them out - all the very best.

thanks you Highlander i shall indeed follow your advicenand seek Leukaemia uk..

would there be anyone to ask for in your experience withnthe group ?

kindest regards to a better future.

Dale.

Hi Dale….. the main charity team have the  main contact so I don’t know names but call their support line (most likely closed today) and explain your situation.