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Hi , new here, just finished my first round of chemotherapy. The isolation is killing me as well as the cancer.
Hello. my wife was given the great news that she is now in remission 2 months ago and is now on a maintenance dose of 100mg of Midostaurin twice a day. Her latest bloods and consultant show that her bloods are in the normal parameters and she is due a...
Hello I am new here, not sure how this all works
Hello. My mother was diagnosed with AML just over four weeks ago; it was then confirmed that she has TP53 - making it harder to treat. She hasn't started any treatment yet as she may be joining a study that is trialling a new drug. We are all worried...
We’re navigating this new addition to our lives, with every update being more devastating than the last. The 80/20 rule applies here for a successful outcome. Like everyone, we aim to be one of the 2 in 10. But optimism can be thwarted by thoughts of...
Hello everybody, My partner has been diagnosed with AML TP53 mutated, we have run out of options for treatment and they have just given my beloved partner only a few months. I am devastated. I have been searching immunetherapy and wondered if anyone...
Hello, I was diagnosed with AML in Feb this year, after a blood test @ 9:30 am at my local Drs I received a phone call at 17:30 from a consultant from local hospital saying I abnormal bloods and asking me to come into hospital that evening and was on...
Hi everyone. Please bear with me whilst I write this. I’m struggling for words. My mum is 65 and was poorly since July, she has Pneumonia and sepsis, repeat infections and was diagnosed with AML in august. We were told she has a strain that responds...
I was diagnosed with AML in April 2020 and received my Bone Marrow Transplant in October 2020
hello everyone I have just been diagnosed with AML following some routine blood tests. I have no symptoms at all so devastating diagnosis and a huge shock. I am 64 fit and active and thought I was in good health. I am about to have intensive Chemotherapy...
