Hi , new here, just finished my first round of chemotherapy. The isolation is killing me as well as the cancer.
Hi Mtjo and welcome to this corner of the Community although I am always sorry to read about how you feel. I am Mike and I help out around our various Blood Cancer groups.
I don’t have Chronic Myeloid Leukaemia (CML) but I was diagnosed way back in 1999 with a rare, incurable but treatable type of NHL reaching Stage 4a in late 2013 so although my Blood Cancer ‘type’ is different I do appreciate the journey rather well.
The Blood Cancer journey can be very isolating, I have had 2 donor Stem Cell Transplants on top of a lot of other treatments……. so I know how hard it can be….. but I just kept reminding myself that the challenging times would pass.
CML is on the rare side, but let’s look for any group members to pick up on your post and get back to you.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00.
This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups….. the one I attend does have a person with CML in it so worth checking.
Always around to help more or just to chat
Hi Maria……. I copied the wrong link … sorry about that.
Do check out the links as there is some good support out there.
