After one course of chemo I haven’t responded , and latest bone marrow is not good news. I am about to investigate MacMillan palliative care in my locality. Any ideas on what to expect and or what to ask for , with a view to remaining at home for as long...
Hello. After a routine medical check up in January, several abnormalities in my blood were detected. Tests and a scan followed and it was attributed to lupus. However, I had a sixth sense something else was wrong and insisted on a bone marrow biopsy....
Diagnosed this week with AML, have had Parkinson’s cfor last five years.curious to know if anyone aware of a connection. Also any advice for dealing with two chronic conditions, and any tips on staying as well as you can for as long as you can. !, Diet...
Hello all! I was diagnosed with a rare form of AML called Myloid Sarcoma. Where normal leukemia is found in blood and bone marrow, my leukemia forms as a tumor off my bones and is found in the DNA of my cells. I was diagnosed originally December 2020...
Hi, my husband has just started chemo.. He was diagnosed with AML 2 weeks ago. It's all very scary and overwhelming at the moment.
Hello,I was diagnosed AML Dec 2021, it developed after 4 months of MDS. I am doing well, normal really, and on my 4th round of monthly cyTarabine and Venetoclax, together with all the anti-sideeffects tablets. I am on the track towards STC when a...
My gran had a very short diagnosis with acute myeloid leukaemia she hadn’t been feeling well so we had a trip to docs and said she was ok, the following day she was so week and admitted to hospital to find her blood levels all over she had weekly transfusion...
Hi, I’m Stuart, my dad was diagnosed with AML in October and was hit hard lol it’s intensive chemo. Lots of infections blood transfusions and platelets. He has had remission stage 1 and he has started phase 2 and contracted covid! he is back in hospital...
Hello, I was diagnosed with AML on July 25 2021. My treatment started straight away, and I finally came home from Raigmore Hospital, Inverness on January 8. just thought I’d say Hello xxx
Hi, Thankyou for allowing me to join this group. My dad was diagnosed on Christmas Day that he had incurable acute myloid leukaemia. It is a rare form in that it is surrounding his kidney and not in his bones. He has additional medical issues a lump...
