Hello,
My father (86) was diagnosed with AML yesterday and I am absolutely devastated.
He had MDS for over 2 years and the last 6 months he had injections every week which he responded well too.
Then he had a couple of infections the last few weeks then his health just deteriorated quickly. He did bone marrow test on Monday and needed to be seen already on the Friday for results. The doctor explained there is no treatment that can help now because of his age. Maybe just blood transfusion to keep him comfortable. My dad doesn’t want chemo and as he is very fragile the doctor advises against it. He had it 10 years ago when he fought colon cancer too.
The worst thing is he lives in Sweden and I live in England, me and my 10 year old daughter have gone regularly every 3-4 months for 10 days. We are supposed to go just before Christmas ibut I am scared he won’t have that long.
The doctors said they can’t tell how long left he had it could be weeks or months. At the moment he is more tired BT eating normal and in a bit more pain. He will receive palliative care from nurses at home first with my mum as long as he manages. I am absolutely heartbroken, is anyone in the same situation living in different countries or with parents who is not having treatment. How long is the normal life span?
I already saying my goodbyes it’s just such an awful disease but I don’t want my dad to suffer from pain anymore 
Hi Anna73436ec3 , I am ever so sorry to hear about your dad….. this is such a challenging and stressful time for you all…. made wire by him being in Sweden.
My story is rather different having lived with and been treated for 2 very rare types of Lymphomas for over 25 years……. so I have no first hand experience to bring to the table.
I am not aware of any group members who are dealing with this exact issue you but let’s see who picks up on your post…… in the meantime, you may benefit from joining and posting in our Communities general……
Supporting someone with incurable cancer
……. support groups where you may well connect with members who are navigating the exact same support challenges.
It is an emotional time supporting family so you might find this Macmillan information your feelings when someone has cancer helpful as well as this link getting help with your emotions.
The Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support or just a listening ear.
Talking to people ‘face to face’ can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Do get back to me if you need further help navigating the community ((hugs))
