Hi my husband has just been diagnosed with AML after 17 years of myelofibrosis. He has also been told he has a P53 gene mutation.
He's recovering from 5 days of intensive chemotherapy and had numerous infections.
Is there anyone on here who has been through this or has any information?
I know his chances of coming through this are very slim.
He's 61 years old.
Trying to get an honest answer from the multiple doctors he sees is like pulling teeth.
Thank you in advance for any information
Hi Tash150 and welcome to this corner of the Community although I am sorry to hear about your husband’s diagnosis.
I am Mike and I keep an eye on our various Blood Cancer groups.
I don’t have Acute Myeloid Leukaemia (AML) but I have been on my journey since 1999 when at 43 I was diagnosed with my first rare (8 in a million) incurable but treatable type of Cutaneous T-Cell Non Hodgkin’s Lymphoma (NHL)……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL was then presenting.
So although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well…… (I also have Asbestosis and Prostate Cancer)…. in my book there is always hope….. In 1999 the then median survival rate for my first type of Lymphoma was 3-5 years…. I turned 70 last Nov….. keep the faith that a route forward can be found.
There are a few active group members so let’s look for then to pick up on your post and get back to you.
You can also click on the main ‘AML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
As always the Macmillan Support Line is open between 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00…… this service provides cancer information, practical information, emotional support, benefits and financial guidance or just a listening ear.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing.
Always around to help more or just to chat.
