AML relapsed and stem cell transplant looming

Hi again Deb C and sorry to hear about the bumps in the road.

Remember that I don’t have AML but was treated for 2 rare types of T-Cell Non Hodgkin’s Lymphomas.

My brother was my donor for both my Allo SCTs….. (June 2014 then Oct 2015) he was my 10/10 match….. But over the years I have talked with many people who have had a successful Allo SCTs with a 9/10 match….. even a few with a 5/10 match.

The main implications of a mismatch Allo is the donor cells need to work slightly harder, I asked my SCT coordinator about this and she said that it’s not seen as a problem.

Hi Mike, that's really encouraging thank you! It all seems rather daunting at the moment and this year has seen every month apart from June in Hospital.  Looking forward to being able to move on and go into 2026 and your comments bave reassured me thank you! 

FLT3 has targeted therapies have team looked into those . 

Morning, how did you get on? I've just relapsed and am having to consider stem cell. 

Morning Angel82, sorry to hear you've relapsed. I had the stem cell in October 2026 and it was tough but recovered fairly well. Unfortunately in April this year I learnt I had relapsed again and there's no more treatment they can offer me. I'm currently having weekly blood and platelet transfusions to keep me topped up as a long as possible.  I know other people who had a stem cell and havent relapsed though and its the best chance of a cure. Unfortunately my AML is tricky and doesn't like to be beaten.

I wish you all the best in your decision!  Deb

Thank you for getting back to me Debbie, I am sorry to hear this...here to talk. 

Take care

Hi Deb Deb C  so sorry to hear your news…..

This is a challenging journey you are navigating……. you may want to have a look at our dedicated general Living with incurable cancer - incurable patients only support group as there people there in the exact same position ((hugs))

Thank you Mike, will take a look!