Azacitadine

Hi MinnieMouse123 there are a few who have been on Azacitadine so let’s see if they pick up on your post.

You can use the search tool near the top and have a look at the older Azacitadine posts and as always you can reply and see if they are looking in.

Thanks Highlander 

Hi Minnie

I started this trial yesterday so will let you know if i have any side effects.

Thanks. I didn't think it was a trial though. Its a treatment that has been around for a few years. My husband has had his first 2 months of it. Not too many side effects so far. Interested to know how you get on too. Good luck. 

MinnieMouse123 indeed Azacitibine (link) has been around since about 2004 initially as a treatment for Myelodysplastic Syndromes (MDS) and eventually taken into the AML treatment fold.

You are correct that Azacitibine has been around for a while but the trial I'm on is for people that have had a Stem cell transplant to see if it helps post Transplant so interesting to see if it has the same effect.

Thats interesting. Unfortunately my husband couldn't have a transplant as he had a bad reaction to his first course of chemo (a different drug). 

Hi minniemouse123

My wife was put onto azacitidine for 6 months following relapse from AML.

This was done to put her back into remission prior to her SCT August 21.

How did it go? I hope her SCT was successful. My husband is on his 4th month of Azacitadine now. Not sure if its working yet.

Hi MinnieMouse123

My wife was on Azacitidine stomach injections for around 6 months. 2 Injections over Mon-Fri then mon/ tue.

Then had around 2.5 weeks off then started again with same regime.

Also given  venetaclax chemo tablets at the same time daily from Feb- May.

Injections made her stomach a little sore due to contant needle stick punctures. Told to rub primrose oil into the affected area which helped.

All this treatment was given as a bridge before her SCT as there was a delay due to lack of beds over the covid period when Hospital was very busy with covid patients.

Azacitidine can be used as maybe your husband case as an alternative if the patient cannot or is not yet in remisson for SCT.

Hope all goes well.

Nick