Hi everyone, this is my first message here. I am female patient 18 years old was diagnosed with ALL when I was 16 can hit remission however my ALL relapsed and I want abroad for a stem cell transplant everything went well except I had to get a colostomy...
My son is 10 months post sct and is having serious complications of the cgvhd of the lungs. His lung function is very poor and we are struggling to get it under control. Is waiting to start ecp at guys. Would love to hear from anyone who has had similar...
Hi, this is going to be a bit of a depressing post, somewhere for me to air all the jumbled thoughts in my head without worrying I’ll be letting anyone down. I’m just feeling very low and in a way broken. When I was diagnosed I was assured that I...
Hey everyone, I'm Ruby I'm 23 and I finished my treatment for ALL in summer last year. When I first finished treatment i had a sort of chemo hangover when I felt hungover and rough for a few months as the chemo left my body. But that went away and...
Hi All, I'm struggling a little today & need some advice how to tackle the issues of not being able to conceive naturally anymore. I had 45 rounds of chemo, 5 days of TBI ( radiotherapy), I've been cancer free for 15 months which is amazing and I thank...
Evening, My Niece was diagnosed with ALL in mid-May this year. She and her parents live in Cape Town so she is being treated at the Red Cross Children's Hospital. She had almost completed her second block of chemo and was about to go into maintenance...
