Last hope for more time.

FormerMember
FormerMember
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My husband of 33 years has tonsil/throat cancer with newly diagnosed lung metastasis. He has been through the hell of radiotherapy 5 days a week for 6 weeks bolted to a table with a mask over his face and shoulders. The PET scan revealed shrinkage of the tonsil cancer but not cured, a further CT 3 months later revealed active throat cancer and the lung mets not grown very much. Prior to this he was beginning to eat limited amounts again back on tablets instead of liquid medications all was looking good and promising. He began to go downhill and was unable to swallow again and an “ulcer” appeared on his palate at the rear of his mouth. It was the tonsil cancer. Oncologist has told us that immunotherapy is the only palliative treatment that can be offered (he starts this soon). This can stabilise, shrink or do nothing for the cancer and potentially give him a further 3 months of life. They do not expect him to be here next year. 
I have become his full time carer doing all the jobs he used to do and I am so very tired and just do not know how I am going to cope with his expected deterioration and keep smiling for him. We have a very supportive daughter nearby who helps as best she can, she has a 3 year old and a job. 
I really don’t know what I am asking for by writing this, maybe it’s just to get it off my chest. But do you know what, I really need a hug Cry 

Thankyou for reading xx

  • Hi , I'm so sorry to read how things are going. My husband also has incurable cancer so I popped over from another group, especially as the site is going down for hours tomorrow for work. I really do understand the tiredness, and I find it hard to smile sometimes too. Watching your loved one suffer is hell and I can only imagine how horrible it is when there's so little time left together. You won't be able to post again after midnight until later on Wednesday, so I just wanted to say that if I could, I'd give you a big hug but will have to settle for a virtual one.

    Big hugs and lots of love,

    LoobyLou
    If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish. 

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  • FormerMember
    FormerMember in reply to LoobyLou49

    Hi LoobyLou thanks for your reply and the hug It was much appreciated. I am so sorry to hear about your husband as well. I agree It is very distressing to see your loved one suffer knowing there is nothing you can do but to be there for them. 

    Big hugs and love to you also...take care X

  • FormerMember
    FormerMember in reply to FormerMember

    Hi there,

    I read your post and think I have some understanding how you feel. My husband of 19 years has stage 4 stomach cancer spread to peritoneum. He’s just had latest scan and spent all day today waiting to hear. I cried all day waiting as we’d been told it had spread to kidney due to problems he was having. He’s also been unwell last few weeks so we’re expected the worst news. Although disease has got worse it’s not actually spread to kidney so he’s now down to have a stent and a change in his chemo. Something more aggressive. A relief as we were waiting to hear how they couldn’t do anymore. But not I just start the rollercoaster of worry all over again, knowing that it is probably just delaying the inevitable but at least giving us more time together and a fighting chance for a miracle. It’s just so exhausting, but all you can do is just take each day as it comes and be there for the ones we love.

    A big hug to you, we could ask do with one right now. Xx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi brambljoo,

    Thankyou for your support you certainly have mine. Just as we think we have cleared a hurdle another appears. I wish you and your hubby all the best and pray the rest of his treatment is not too gruelling. Tears are my companion reminds me of a song “I’ll do my crying in the rain” mine is in the shower..Thank goodness for Macmillan I don’t know where we would be without them especially our CNS he is ace!  

    take care and a big hug for you as well XX