My husband’s prostate cancer has finally become resistant to the medication, with mets in lymph nodes, clavicle and bones (rt hip, femur and rib) . He had chemo last year which was only successful for a short time and is currently 4 cycles into a different one, which doesn’t seem to be having much effect so far. He’s getting some low back pain now which the oncologist vaguely said may be due to the Filgastrim injections he takes after the chemo. Or it could be new mets in the spine – we won’t know until after he’s had more CT and bone scans in March.
We were told at diagnosis that it was incurable, aggressive and could only be controlled for so long but now it seems they’ve nearly exhausted all the options and it’s feeling scary, especially as one of the oncologists recommended that an SR1 form be completed for attendance allowance, despite hubby declining it as he’s currently still able to lead a normal life, even with the chemo. Macmillan/CAB completed it on his behalf and we were shocked that it was granted so quickly. We Googled SR/1and saw that it refers to people with 12 months or less to live. His oncologists have always remained non-committal and never given us a prognosis so we’re feeling rather shaken and anxious right now. It suddenly feels as though the end of the road is finally in sight.
Apologies for venting on here - we haven't mentioned it to friends or family.
Hi Chocaholic28
Sorry to hear about your husband though good to hear he is feeling ok at the moment. When I look at the SR/1 form it notes "likely to live 12 months or less" and certainly I have seen cases where people lived over that. Perhaps our only choice is to make the best of everyday.
I know some people do find it difficult to talk about cancer to freinds and family, I wonder if the talkng about cancer pages might be helpful.
No need to apologise on here, we all need suppoprt sometimes.
<<hugs>>
Steve
Thank you for your reply and reassurance Steve. Also for the link to 'talking about cancer' which has some useful information I hadn’t seen before. We have actually told family and friends that he’s had to have chemo but don’t like to mention it unless anyone asks. He’s been playing it down and making it sound like no big deal to friends but his brothers know more about the current situation and are sympathetic.
As you say, all we can do is make the most of our time together. Since my last posting, hubby has asked the registrar about a holiday in September and she said it should be okay so we’ve booked a trip to France.
Best wishes.
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