Hi don't know if anyone can help me, but my husband was diagnosed in March with incurable esophagus cancer and bone mets in spine T7 and C4, had one of radiotherapy on Wednesday for back and shoulder pain, had a video call on Wednesday afternoon to discuss further treatments, we have been told incurable and all further treatments are palliative, have contact with local hospice where I'm well know as I am a pharmacy technician and the pharmacy I work in supply all medication to them I vist once weekly to do stock order, have 2 wonderful macmillan nurses, and my husband had a call from the district nurses to see how he was doing, also had call yesterday from local hospital to ask him to go over Monday for pre assessment for chemo, hopefully to start Tuesday, had a call from Kate macmillan nurse to talk about stating herseptin, how effective is herseptin? He seems so strong and brave, and I'm falling apart, I'm still working and had major wobbly at work yesterday, I know I need to be super strong and brave and just can't get head round everything, this is the 3rd time my little world has been shattered 1st I was 20 a car mounted the kerb and knocked down my fiancé resulting in his death, I had to cancel our wedding, my ex husband drove away from our house during our divorce in a mad temper turned his car over on a corner and took out an on coming car resulting in the death of the other driver, I was the main police witness against him he got 4yrs for causing death by dangerous driving, and now this it took me a long time to find my soul mate, and now I feel like he is being ripped away from me, I just don't know how in going to be able to support him in the way he deserves.
Hi Sal1, and a warm welcome to the group. I left your post yesterday, waiting for some of our group members to answer first, but it's a bit quiet at the moment. You might like to ask about the meds in the Gullet Cancer group where they are very happy to share experiences with meds. You're going through a dreadful time and I can see from your post that you've had a plateful of it already. Are you free to go the hospice appointment with him? You could get all those questions answered and it's so hard for one person to take in all the information. Things will be clearer then and you can plan how to, as you say, 'support him in the way he deserves', although I'm sure you're doing that already. Please let me know how you get on tomorrow and do post in the gullet (oesophagus) group for information on the meds.
Love and hugs,
LoobyLou
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