End of life care

FormerMember
FormerMember
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Hi all 

My 80year old dad is nearing the end of his life at home he has liver cancer which has spread to his lungs, he was diagnosed on the 9th March and already things are bad. I have moved In with my parents to help care for my dad also my mum but to be honest this is just about breaking me every day is something new , today his hospital bad arrived which is an experience in itself! Night time is worse for my dad he is sick and goes to the bathroom alot which is proving very difficult as he needs one of us to help him walk there and back he is to weak, tonight for the second time in 4 days he legs stopped working on the way back from the bathroom has anyone else experienced this? I feel alone and lost like many others at this time with the virus support is less than it would be, I want to care for my dad the best way I can as this is the last thing he would want to have his wife and daughter doing this but I dont know when to ask for help or if this is who it is when you care for someone. Sorry to go on! 

Stay well and safe x

  • FormerMember
    FormerMember

    Hi sorry to hear about your dad .my husband has end stage liver cancer .you should ask for a camode for you dad if he'd struggling with walking  was your dad assessed for what he might need to make things easier for him if not jus ask the nurse I'm sure the will help take care X 

  • FormerMember
    FormerMember

    Don't be afraid to ask,  there's help still available for you. 

    District  nurses, Macmillan nurses and hospice nurse if you have one. 

    Don't struggle alone. 

    I know how you feel,  I'm going through it too. 

    Take care of you too!  X

  • Hi , has your dad been referred to the local hospice? If not, it's worth calling his GP to ask for a referral as it opens up so much more support in the home. Also, your dad is entitled to a Care Needs Assessment and you are entitled to a Carer's Assessment; if they have not already been done it's worthwhile looking into. The Macmillan nurses could help sort them out. You're not 'going on', you're tired and worried and your post is a measure of how much you care. Please let me know how you get on.

    Love and hugs,

    LoobyLou
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