Well it’s 18 months since I was diagnosed with T - ALL. Still not sure if I should be saying acute lymphoblastic lymphoma or Leukaemia but it doesn’t seem to matter. I have been so lucky with an aggressive cancer that was just in my chest and has not gone any where else.
Bone marrow biopsies have been known to make me cry (just between you and me), and now I have stopped to think about it, there has been a couple of scares. Rigors are very over rated but did bring me and my nurse closer together. “Well if we weren’t buds before, we definitely are now” are words I shall never forget. Thank you x
Nurse made me laugh last week, well not at the time but later. I had just had a bone marrow biopsy as was a bit embarrassed as it had actually made me cry and I felt the need to say, sorry I’m not very brave. You ARE brave she said, I would NEVER have this done. Thanks for that x
But all in all, from a self confessed not very brave person, it’s not been as bad as I feared. So I feel like a bit of a fraud coming on, because I see such bad luck other people have had, and are having. Some people are so brave, more than anyone should have to be.
So how have I found myself here? Well because I live for my holidays and hobbies and I am looking for some scuba diving with cancer advice. See, told you I was shallow - sorry about that one!
Seriously, and I am serious about the diving advice, I am also interested to speak to anyone on UKALL 14 protocol in the maintenance phase. As I am. I thought maintenance would be a breeze but can’t say it has been so far, 2 months in and had to stop treatment. I’m going to die of old age before the cancer treatment is finished at this rate!
Hi
I’m sorry that you have to find yourself here but like to offer you a warm welcome to the Online Community. I am also very sorry to hear about your acute lymphoblastic lymphoma diagnosis but am pleased to read your positive attitude to your treatment.
A cancer diagnosis will bring many questions, lots of emotions - don't worry, you are not a fraud. I found being able to talk with other people who are on the same type of journey helped me a lot. The Online Community is organised into dedicated support groups and I would recommend you join our Acute lymphoblastic leukaemia forum.This is a good place to find people in a similar situation .Simply click on the link, read some of the posts and then introduce yourself by putting up a ‘New Thread’ or just join in with existing discussions by clicking on 'reply'. It also helps to take a few moments to update your profile then others in the group will find out a bit about you. You might find someone else with a passion for scuba diving!
Big hugs to you Bxx
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