Hi,
am new here , my story ..
March 2018 I had I had one tumour removed and both ovaries and Fallopian tubes , follow up was inhibin blood tests 6 monthly and chat with consultant , I permanently had niggling pain on my right side and in May this year inhibin shot up to 368 , I then had CT followed by MRI which found 5 Tumours, I then had major at the end of September 2020 and had womb removed , bowl resection , omentum removed , debulking , more small removed as well and started chemotherapy on 5th November having my 3rd round of 6 today , I’ve lost all my hair and feel so ill for 2 weeks , have a few days of feeling ok and then it all starts again , I had a Ct on December 5th and they have found a lump in my breast which is going to be investigated, I’m so angry at life right now I don’t even know how to explain it , I just want me and my normal life back !!
Hi Koda and a very warm welcome to the online community
I'm very sorry to read that you have been dealing with a granulosa cell tumour for over 2 years now and I can understand why you'd feel angry with life right now.
The community is divided up into different groups so I'm going to recommend that you join the ovarian cancer group which is a great place to ask questions, share experiences and get support. I've had a look in the group and there are a few people there with this type of tumour.
To join just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post questions in the same way as you did here and join in with existing conversations by clicking on 'reply'.
When you have a minute, it would be really useful if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you need any help finding your way around the community just give me a shout.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
