Myeloma

FormerMember
FormerMember
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Hi 

I'm a 43 yr old male and was diagnosed with multiple myeloma after 2 years of complying with back pain and bone pain loss of weight no appetite but was told it’s muscle pain so pushed more and ended up having cameras and mri scans and then blood tests and finally a bone marrow biopsy to confirm it  at the end of July and was then starting my chemo cycle 2 days later so didn’t have much time to digest it all I have 2 kids 15 and 10 which has been hard for them to deal with and my wife too I worked for myself doing cleaning and been told to give that up for the time being but obviously this brings financial worry and stress and the fact that I just can’t do as much now plus all the medication that goes with the chemo injections was really playing with my emotions just not really knowing what to do but I have now finished my chemo in nov was cut short on last cycle  due to me getting jelly legs and pins and needles in ankles and lower legs which made getting about a bit more difficult I’m now going for a cell transplant starting in March as my levels have gone down but it’s funny that I’m not more happy about that as in remission but I feel that it’s not over yet so I don’t want to get too excited if that makes sense to say I feel lost is a understatement 

  • Hi  and welcome to the Online Community, although I am sorry to see you finding us.

    Talking with people who are on the same journey can help a lot so can I direct you to this link to our very supportive Myeloma group as this will open up your concerns to a wider audience who know exactly what you are going through at the moment.

    Just follow the link I have created then hit the ‘Join This Group’ tab just under the main group name, then go to the 'Start a Discussion' tab and set up your very own Discussion and introduce yourself to the group and ask your questions.

    I have a different type of blood cancer but have had two Stem Cell Transplants (SCT) with Cells from my brother so can I also highlight our dedicated Stem cell transplants group - this is a great place to get support through the SCT rollercoaster.

    You may find our various Macmillan Support Line Services to be helpful - call them on 0808 808 00 00 This free service covers Emotional Support, Practical Information. Clinical Information, Financial Support and Work Guidance mostly open 8.00 to 8.00 but check the link.

    I will keep an eye open for you on the SCT Group.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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