So sorry to see you joining us here and reading about your Sarcoma spreading :-/
Apologies you had to wait for so long to get a reply, maybe no one with experience of sarcoma saw your message. I don't either but couldn't just read this and pass by.
Emotional fears once you get news of recurrence or cancer infiltrating to other areas is always going to cause distress. Have you been told of what treatments you can be given to help this this new finding ?
There is a Sarcoma Group here (link) you could join to get in contact with other sarcoma members, some of which could possibly have a similar diagnosis. If you join the group do start a new discussion as an intro asking any questions you may have.
I really do not know what to do. I cannot stand the mix of emotions they are driving me mad. I have tried alcohol, prayer, talking but nothing helps. At this moment it only my family keeping me from suicide, my life feels like it's over so why prolong the agony.
Hi @mandmand, if you feel so bad, please ring the Samaritans.
There's a helpline 0808 808 0000 but it's not open now till tomorrow, 8am to 8pm, 7 days a week.
The people there can give u details of the Macmillan n Maggie's centres too, where u can talk to someone face to face. Or just keep writing on here, there's usually someone around whatever the time of day or night The sarcoma group
a good place to start, as says
Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
Hi , I’m sorry to here how you feel, I remember the turmoil of emotions I felt when I was diagnosed with incurable metastatic melanoma, no primary found but a spread to pelvic and abdominal lymph nodes then my ovary and told statistically I had less than 12 months. I laughed in disbelief, then felt numb, and then what’s the point, before wanting to make the most of my time left, that was back in 2015. It seemed a long wait for my first treatment to start, and at the time I thought that was to be my only treatment and that on average it would last 9 months before it stopped working. The reality was it did only last 9 months but 7 months in a new treatment became available on the NHS for me, which I’m still on. I count myself lucky and found the living with incurable cancer group on her really helped. I do not know enough about your own diagnosis to recommend that group to you but I see you’ve been recommended the sarcoma group, I hope you join or at least take a look at the link.
The Samaritans as already suggested have a 24/7 phone line if you need to talk on 116 123
I found making a list of things I was worried about helpful, reading the list back, there were somethings I needed to do, and others that when I read the list back were just, well silly things to worry about in the grad scheme of things. What you are going through is horrible, but natural, and I hope you find your way of coping. I found it useful to read the coping section on here, it made me feel normal when I read all the different emotions people had, and the tips of getting through things.
For me sometimes I didn’t know how I felt, and it was actually a relief to cry, and to get the emotions out, I hope you reach out for others to try and help.
