For people living with incurable cancer only
This group is aimed only at people who have had an incurable diagnosis themselves, as we have had feedback that they would like a safe space to share their feelings openly among themselves.
If you have a loved one with incurable cancer, you are very welcome on the Online Community as a whole, but we would ask that you respect the wishes of people with incurable cancer and not post in this particular group. Instead, you will find really good support in the Carers group, the relevant cancer type group and the supporting someone with incurable cancer group.
I'm nervous about sharing my good news as I know things are tough for so many at the moment, but I hope this encourages some and I wanted to tell people who would really understand the impact on me as this roller coaster cancer ride is hard work.
At Christmas I was hospitalised with a nasty gastro bug and was told it was my immunotherapy treatment failing and I'd not be given more. This was a last attempt to find something as my cancer was growing rapidly out of control and I was referred for palliative hospice care.
I had to have scans last week following my illness at Christmas to check what was going on. Well, my consultant rang yesterday to tell me that not only is the treatment working but it's extraordinary and has already managed to eradicate cancer that was in my pelvis, abdomen and lungs - all clear! My brain mets have gone from 5 lesions to 1 and my main peritoneal tumour has shrunk significantly. I have never been given any good news at appointments or scan reviews as everything has always grown on treatment to date. I'm shocked and delighted and nervous it's all a big sick joke but finally I have a little bit of hope that I have extra time to enjoy my children for potentially much longer than I was expecting!
The brain is still a worry and the tumour is still there but I'm so glad there's a reduction in the rest - it feels like many Christmas's rolled into one.
I was told I was not suitable for immunotherapy and had to seek second opinions for this treatment - so glad I did.
That's fabulous news Clare! Long may it continue!
Hope is important because it can make the present moment less difficult to bear. If we believe that tomorrow will be better, we can bear a hardship today. - Thich Nhat Hanh
Clare, that's wonderful news. I'm so happy for you.
That is fantastic news and I am so pleased for you. We are always happy to hear good news on here because it gives us all a bit of hope that there are treatments out there to help us.
I have brain mets too which are thankfully so far responding to the PARP inhibitor I am on. I was refused Immunotherapy because of the brain mets so I am interested to know the name of yours and which hospital put you on it?
Your news has made my day. You are too young to have to be coping with this disease and with young children. My closest friend is the same age as you with a 1 year old and has just completed chemo. I was devastated for her when she told me.
A big congratulatory hug for you.
Its always fantastic to hear someone’s good news so please don’t feel bad at putting it on. Many many congratulations to you. Lots of love and hugs
Hi Clare, thats fantastic news, the imunotherapy did the same to me and gave me colitis and an under active thyroid gland. They say it can can on working for some time even when you have stopped having it so long may it continue xxx
Lynn 2. xx
Don't be nervous about sharing good news, we are all in this together and good news for you is hope and support for us.
Believe what they have told you and celebrate!
Wonderful news Clare. Thank you for sharing it with us.
Great to hear such good news. As already been said it gives hope to others. Hope you are going to celebrate you deserve to.
That is wonderful news!! What a great way to start the year and long may it continue.
I hope you are going go celebrate?!
Thanks everyone - you're all very lovely.
DW1202 - I live in Wales and am on Pembrolizumab. 3 weekly infusions - much easier to tolerate than chemo, just fatigue really. I'm resistant to chemo and they felt there was nothing else to offer.
Hi Gobaith, I've not been online for a couple of days and have just read your AMAZING news. Always let us know the good news as well as the bad and it gives everyone Hope, that's the lift we all need. It just shows it's always worth getting a second opinion! Well done!
Take Care Love Annette x
Wow I am so happy for you Clare. I am new to all this.
I was diagnosed with bowel cancer in June last year. I was heart broken and still am. I am only 41 years old with 5 kids!
It had spread to my liver but I am on chemotherapy tablets on my 7th cycle and it seems to be shrinking the lesions in my liver. CT scan showed the tumour the same size no bigger but the scan before that showed it had shrunk a bit.
So pleased to read your post and hear your news. More of the same please.
love Gragon xx
Newyddion bendigedig, Clare. Wonderful news. I am also Welsh - from just outside St Davids. Are you anywhere near?
Its always good to hear such encouraging news. My brother has just been diagnosed with advanced lung cancer and hopefully will have immunotherapy after he completes chemo and rads (he had his first chemo today)
I myself was diagnosed with stage 4 endometrial cancer 4 years ago and have been so lucky in having had a much better response to treatment than expected
May you continue to have good news.
With very good wishes,
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