Hi all
Had problems w site and then ended up in hospital w kidney stone!! At least not cancer related .. so not been on site for a while.
I finished my chemo and saw my consultant on Wednesday last week after a Pet Scan she said that the I had had very good response only one tumour in my liver which has not responded otherwise I am clear. She said that the MDT discussed resecting the tumour as it is on the surface and easily accessible which would give me a good prognosis - years rather than months. If there had been a medical reason I would have been disappointed but would have understood but I cannot get my head round his attitude.
My oncologist still thinks resection is my only hope - no other treatments and no trials available as they are unlikely to start until sometime next year because of covid. She has suggested a further scan in 6 weeks with a view to asking liver consultant to reconsider but to me 6 weeks is a long time and with covid they may well have stopped surgery again. Any ideas??
x
Hi all
Didn't get back on last night fell asleep after my walk - definitely not as fit as I should be.
Today had telephone call - op is scheduled next Tuesday 8th December!! I have covid test, telephone assessment and pre-op bloods etc this week and then have to seriously self-isolate Friday/Monday. At the moment booked for open surgery so fingers crossed. Love to all xx
Hi Norberry
Thank you for that.. If I'm honest I am scared stiff at the prospect of having open surgery which probably sounds odd as I was the one who fought to have it but it is my best hope of getting more time so am concentrating on that. A friend of mine just text me to say it felt weird to say but she is pleased I am having major surgery ..
If all goes well I should be discharged after 7-10 days so just before Christmas. xx
I have just read your profile - I hope your wife is ok. My husband has had relapsing/remitting MS since he was 30. At the moment he is ok but I try not to tell him much about my issues as stress tends to cause a flare up. .
Of course you are scared, we are all scared for you, nobody wants to give an opinion on something so serious but it looks like everyone supports your decision to take this route. You will win the day.
That MS is a bugger, stress really does exacerbate it. I am a snowflake male so I moan every day about my troubles, she has said " man up" to me a few times.!!
Anyway, the biggest bestest wishes ever.
Hi AP7 and Youngman
Thank you. x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007