Hi everyone, some of you will know my history but i will just update for those who dont know. I was diagnosed six years ago with non small cell lung cancer, i had a course of chemo which shrunk the tumours by 75%, then when thing started to regrow i went to the christie at manchester to take part in a trial which gave me good results for a couple of years, after that i had immunotherapy which caused lots of complications. When i couldnt have any more of that they offered me more chemo which i refused and over christmas and new year i had radiotherapy. My scan results shoed that it had shrunk some bits but i had two new spots, one on my adrenal gland on my kidney and one in my neck. I had started to get some odd symptoms such as really bad headaches and dizziness and my arm started to do its own jerking thing, they sent me for a brain scan on the 5th of July and on monday this week i got a call from my lung nurse saying that my Oncologist wanted to see me yesterday friday 10th july. Well although i had suspected it i was told i now have brain mets and they are in the place that controls sight !.
She has put me on steroids to help with the symptoms but this is the end of the road for me and i am so sad. I will be refered to our local hospice for end of life care and will hopefully hear from them soon. I want to die here in my own home with my family and of course my wonderfull husban who has been my rock over the last six years, he has never missed an appointment and when we were told last week that he couldnt come to my app because of covid he kicked up a fuss (not like him and he came in with me to get the bad news.
I am so scared, i dont know how long i have left and i really dont want to know, i just want to go on my holiday to scotland in september, God willing and make some more lovely memoroies with my family and friends.
I just want to say without this forum, the wisdom, advice and friendship albeit virtual it has made my journey so much easier.Thank you all. keep it going for all those that need it after we do.
Hi Lyn
i am really sorry to hear your news. I read your post and wanted to send you a message of love and friendship even though we have never physically met. As you say we are all virtual friends and you
re travelling a road which we are all on just at different stages. I hope the steroids help and I am so glad you Anne the love and support of such a devoted family . I send a virtual hug , love, friendship support and want you to keep making those wonderful memories with your family and friends. All my love Tamencio xxxxx
