Immunotherapy

Hi Gsd Rule                                                                                                                                                                                                                                                       So pleased to hear you are feeling better,really pleased the painkillers are working for you, and you feel more like yourself.Pain is almost impossible to think through it just makes things more difficult to deal with.I hope it all works out well for you Keep Calm Xx

Hi Daloni

I am a new member, only 53 and given prognosis of 6-9 months. I have created my bucket list of things to do with family and friends whilst feeling well enough.

Your message has given me some hope that the timescale is only a guess on others and that I may have a chance of going past it.

I too suffer immense kidney pain have a urostomy bag for my right kidney and a neufrostomy bag for my left kidney but at present side effects of chemo is playing hell with my kidneys. 

Undergoing chemo to shrink it but will go on a clinical trial if it does not work but keeping my fingers crossed chemo will work.

Keep on fighting everyone 

xx

Hi

Welcome - and nice to meet you. That’s a shocker of a prognosis and I’m glad I’ve given you hope. I think hope is really important.

Kidney pain is a doozie, even the nurses agree on that. I don’t know why but it makes people emotional too. I’m not a big one for crying but kidney pain sees me in floods of tears and I’m not the only one. I’m sorry to hear you have kidney pain. Tell me - what’s the difference between a urostomy bag and a nephrostomy bag? I had a nephrostomy for a little while so I kind of know what that is. 

I hope you make it through the chemo in one piece. 

xxx