So tired

Hi Mogsmum 

It sounds like you are going through a really tough time. It doesn’t help that the weather is so hot, I think everyone is finding it a bit difficult to be up and about. Especially with discharge problems and all the faff that goes around that. I hope as you get further through the cycle you will feel a bit brighter. When I had chemo on a 3-weekly cycle earlier in my “journey”, it often took until about day 10 or 11 of the cycle before I felt vaguely normal. I found keeping a symptom diary helped. 

Thank you, its nice we have lovely people on here, helping us along this scary journey x

Hello Mogsmum, 

It's really hard.

We're used to being active and independent and suddenly we're much less so.

I fought against my tiredness at first before realising that I wasn't acting in my own best interests and that was when I began to listen to what my body was telling me.  And some days that was just to leave it time to recover. 

For me, breathwork helped a lot to reduce my stress...

Hang on in there!

Thank you, and the flower is beautiful 

Oh Mogsmum, I wonder sometimes, well a lot of the time, how you ladies manage to get through everything that comes your way. I really don't know how I would cope if I were a woman. You have my greatest admiration. In a way I can understand a little of what you're going through as my wife was diagnosed with rectal cancer about 3 years ago. She had 5 weeks of 5 days a week radiotherapy and then around 13 weeks of chemotherapy in total. Her tumours have disappeared and she's had a few 3 monthly scans which have been clear.

However, her bowel is recovering from an operation to remove a substantial amount of small intestine. She's 68 now and for over 2 years she's had to wear incontinence pads at night and pads through the day. Should we go out in the car to see grandchildren that are in Scotland and England (we live in Northern Ireland) or indeed to go anywhere, she has a bag packed with clean underwear, jeans, even socks, to call on if she doesn't make it to a toilet in time. I empathise completely how you're feeling Mogsmum. 

As for me, I was diagnosed with incurable bone marrow cancer in March 2015, my bloods currently are so poor. I have treatments 3 times a week, every week in life. I'm literally just hanging on, waiting for the next steps. I wish I could swap places with her sometimes but then again I wouldn't want her to go through what I'm going through. 

Life's unfair, everything is going along fine and then a massive spanner is thrown in the works and our future is completely different. 

Take care Mogsmum, I'm sure we'll chat again.

Bless you ty man

You certainly have a lot to contend with, my hubby is a star, I nursed him through tonsil cancer 11 yrs ago, he is fine niw thank God, I think a lot of people who haven't been through it dont understand, having a hysterectomy was ok, it eas the complications that went with it 

Nercrosis of the abdominal wall 

Got through that told it was stage 3 carcinosarcoma, chemo and radiotherapy, then 8 weeks later after the scan stage 4, mass in the virgina and nodules on my lungs, so sorry your wife can not do what you want to do in your lives, cancer controls everything 

I do take a change of pads, when I feel like going out which isnt often, but the its changing myself in public toilets and even that is a effort, i hope you and your wife, are feeling a bit better soon 

God bless you both