Advise please

FormerMember
FormerMember
  • 24 replies
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Thank u letting me join group , at my last appointment My consultant looked me in my eyes and said you know I cannot cure this I replied control it . She said that's my aim she ask me if I had any questions I said no .. the advice I'm asking 4 is what should i ask i dont know . how long do i have ?? Do i really want 2 know ... how will i feel??? I dont know ... I know I'm scared 2 ask ..... I'm sorry if my message is not clear but i just can not put anything together at the moment I'm sorry 

Kym x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi maz59

    Omg thank u for your reply I dont understand y I cried while reading it 

    Thank u I am beginning 2 think positive after all the replays I have received. 

    Kym

  • FormerMember
    FormerMember in reply to flowerlady

    Thank u flower lady 

    I cant understand y my consultant wants to stop my chemotherapy if no change in size of cancer after just 2 lots I know from 15 years ago I had 8 rounds of  chemotherapy 4b they even gave me a scan 

    Kym xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi button 16

    Thank u 4 your reply u have done very well I hope I have the courage n positive outlook everyone has on this site n especially this group 

    Kym x 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi  daloni

    Thank u very interesting read 

    Kym

  • FormerMember
    FormerMember

    Hi Kym 

    first of all welcome to the group no one wants to be a part of. Definitely lots of support here. When I got my diagnosis I was prepared to hear I had cancer, was prepared to hear I needed treatment. I was not prepared to hear stage four or incurable and watch wait and see I stage four seems counterintuitive. Also to hear they are treating e as palliative because there is no cure.  This is my third cancer so I was prepared for almost anything except for what I got.  

    Mad for knowing how much time I know the stats but every persons biology is different so know one can possibly know or be able to accurately tell you how much time you have. I’m looking at this as I will be the first person in history to beat this.  Do you mind if I ask what kind of cancer you have I was diagnosed with Mantle Cell lymphoma which typically hits males over 60 not women especially woman 45years old.  I never fit into their stupid boxes.  I’m seeing a specialist at a specialized cancer centre actually it’s one of

    the top five cancer centres in the world. So hopefully I will get  some treatment options. But they can hold off until after my wedding August 3.  

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Denisa

    Thank u

    Kym

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Denisa

    Thank u

    Kym

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Denisa

    I have replied 2u 4 times but it's just not showing I have just wanted to say thank u 4 sharing with me

    Kym

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Kim I am sorry I was bit negative but that's how I felt.I am a kind of person I need to know and to get organized.

    Anyway I had my lung biopsy results today and it's not a secondary or metastatic cancer but a new primary lung cancer.I don't know from where because I never smoked or drink alcohol but might me a effect of radiotherapy or chemo I had.

    So I don't know if I should laugh or cry because the doctor in June misdiagnosed me for metastatic cancer. I was offered immunotherapy or just oral chemo and surgery.So if this a case I will go for it.

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Kim I am sorry I was bit negative but that's how I felt.I am a kind of person I need to know and to get organized.

    Anyway I had my lung biopsy results today and it's not a secondary or metastatic cancer but a new primary lung cancer.I don't know from where because I never smoked or drink alcohol but might me a effect of radiotherapy or chemo I had.

    So I don't know if I should laugh or cry because the doctor in June misdiagnosed me for metastatic cancer. I was offered immunotherapy or just oral chemo and surgery.So if this a case I will go for it.