As you all know my situation I won’t go over old ground again. I just wanted to tell you about a positive experience I had today. I recently had a ct scan the results of which means my haematologist wanted me to have a one of shot of radiotherapy on my neck, so off I toddle to the hospital this morning. The doctor couldn’t have been kinder and at one point when I cried he took my hand and reassured me that as a palliative patient his only goal was to make things as comfortable as possible for me and that he would do his best to make sure all appointments fitted in around my other commitments. I can’t tell you how much that meant to me as it’s not usually the case. He said that as a palliative patient he could be more flexible and bend the rules for me as much a possible, it’s the same with my kidney dialysis doctor who is also treating me as a palliative patient. I think once you come to terms with your prognosis and start to except the right kind of help it’s a huge relief and the atmosphere is much more relaxed. There’s so much help on offer all you have to do is embrace it when the time is right for your individual circumstances and make the most of what ever time you have left.
Deartvman
i think I might try giving my updates in the incurables section and leave the more delicate subjects to the end of life group. Please don’t be upset by having your post removed, you are a very important member of this community and to me personally and I value your upbeat attitude to life despite all the difficulties you face on a daily basis. So from now on just check to see if the post is in the incurables or end of life and there won’t be any problems. You are an amazing person and I am a better person for having known you as a online friend, so please don’t go anywhere and that’s an order ! !
