As you all know my situation I won’t go over old ground again. I just wanted to tell you about a positive experience I had today. I recently had a ct scan the results of which means my haematologist wanted me to have a one of shot of radiotherapy on my neck, so off I toddle to the hospital this morning. The doctor couldn’t have been kinder and at one point when I cried he took my hand and reassured me that as a palliative patient his only goal was to make things as comfortable as possible for me and that he would do his best to make sure all appointments fitted in around my other commitments. I can’t tell you how much that meant to me as it’s not usually the case. He said that as a palliative patient he could be more flexible and bend the rules for me as much a possible, it’s the same with my kidney dialysis doctor who is also treating me as a palliative patient. I think once you come to terms with your prognosis and start to except the right kind of help it’s a huge relief and the atmosphere is much more relaxed. There’s so much help on offer all you have to do is embrace it when the time is right for your individual circumstances and make the most of what ever time you have left.
Hi
I'm not going away anywhere, how can I leave you when you need support, as well as others. I AM embarrassed that some have almost pleaded with me to stay, that was, and is not my aim. I cringed. I'm so sorry.
I'm concerned about you Maz , that your temperature will be a barrier to you going home which I know you desperately want.
Also the exemplary treatment you were experiencing is starting to unravel. You were told you were boiling? You knew that, you wanted to know your temperature.
I'm looking forward to going on Sunday, but storm Dennis may have a say in that. There are already many flights cancelled today, the numbers will increase and tomorrow will be no better. If we can manage to get away to Stansted from Belfast International at some time on Sunday evening, things will be ok. Although there is only one other train suitable to go to Peterborough from Stansted Airport and we may miss that, I have booked a room in the Premier Inn at Stansted Airport which I can cancel at up to 1pm on Sunday at no charge at all and by then I should know what's occurring 
What happened and why? I'm not allowed to discuss any moderation decision on the site, nor anyone else for that matter! So I'll try to explain, hope I don't get myself into trouble. I'm not going to discuss the actual decision, I shall simply say what happened. What I would like to say to you Maz is I'm disappointed that I can't put my viewpoint. Decision gets made. Then implemented. Full stop.
Well, when I tell you, I'll tell it simply, bones only. Someone said something. I explained they shouldn't do that, read guidelines. Gave them example. However, initial post gets removed for the reason I explained and because mine "made no sense" mine was removed and of course I was informed. Would it not be better leaving both in, others could see and understand, take notice. Having that done touched a raw nerve. That's the simple version.
Maz, I hope you have some info about getting home. By the time I took to write this, you're maybe home, hope so, but I know if I go looking, I risk losing it when I return. To anyone who that has happened to, a little tip. Before leaving your half made post, click on the last words and Select All, then Copy. When you return and it's gone, simply paste it back in.
To Tinalay, , , Popgate/Flippen and others, I can't leave you all with less support than you have, I'd also like to say that I benefit greatly from the emotional lift you give me, I can't lose my good friends' warmth and friendship.
Love you all
Tvman xx
PS Maz, life in the "old dog"? Are you talking about Daloni again? Lol 
Btw, that's a joke, I know my friends will know that but some people around don't have a sense of humour!
Dear @tvman,
it’s so good to hear from you my friend, I hope you can get to go on your trip, will be keeping my fingers crossed for you. This weather is so disruptive it’s hard to plan anything at the moment. So let’s celebrate making a fresh start in the forum for all of us now the ambiguity between the two groups is about to be clarified. There’s room for all opinions so that no one is left feeling judged.
