Dear Friends,
It's my one year stomaversary. Had my APR surgery because of a very low small rectal tumour a year ago that resulted in a permanent stoma. Very successful, got rid of my cancer. But the operation itself was fairly traumatic and I had a huge amount of pain afterwards which was a shock. I am now physically healed up but as I have approached this one year I have had flashbacks to it and have been very tearful. Am outwardly (to friends and family) coping well and get by with finding the funny side in it all, but underneath have recently been struggling. Has anyone else experienced this?
Jane xx
Thanks Kath.
Mr Randall wanted me to have an EUA and reversal at same time if I was okay. I was uncertain about that and pushed for a check first. So I think I’ve pushed some buttons. He’s offered his junior to perform it and I’m more than happy with that. He said that the NHS list is long and he had hoped that I would have been reversed within six months.
To be honest the cancers in the bin. Hopefully. I’m okay and even better now that I know I haven’t got a fistula
I said I would go on her list. I feel it’s not major surgery. It’s the recovery and getting control will be the challenge. So I’m waiting til end of week and booking that holiday.
Let’s get scan over then relax
Ann
Really pleased to read that, Ann. Hope the scan goes well for you; you must be so relieved that thngs are becoming more definite day-by-day.
Thanks Bagpuss
I feel relived that I can now plan for what’s ahead. This …….oh come in for a check for a fistula and if you haven’t we will reverse you was not in my future planning.
I needed to know that I have not got a fistula so I can live my life. Whoopi is fine in fact I am grateful for her.
Now I will have time to get the necessary supplies and do the research on LARS
I’m not sure I want a reversal, that sounds so selfish but seven months ago I would have jumped at the chance now I’m settled and enjoying myself with my stoma
We will see what dates they come up with
I may be in Spain seeing my brother. His prostate cancers back , my hubbys Parkinson’s is moving on. I don’t want to miss precious time with us all together.
Ann
That's not selfish at all, Ann. Things in your family have moved on, as you say. After the scan YOU can make a reasoned decision based on facts and proper assessments, not speculations. You say you are enjoying yourself with your stoma - to my surprise I know exactly what you mean. Always guard against those who, for whatever reason, won't or can't distinguish between living and being alive. There's far too much of that about, in my view. Put another way - don't become a 'hostage to fortune'. And something else - the opposite of being selfish - your huband and your brother both need you strong(ish) as you are now.
Yes.
I will chat to the men in my life about our holiday. My brothers home for Christmas. My hubby would like me to do what feels right for me
At the moment I feel I would like to try after my holiday Now that is selfish
Ha ha but that may not be possible with NHS.
We will see if they contact me by Friday I will accept Friday I will phone my team and tell them my holiday dates.
Thanks for your support
Ann
Hi Ann
Really pleased to hear your positive news-that gives you something to go on now, and no fistula is really good news. All the best with the upcoming scan.
Hopefully you can get your Spanish trip sorted out and have that to look forward to-you need to get the use of that new tankini! I’m sorry things are difficult as regards your brother and of course your hubby, but having something nice on the horizon will give everyone a boost. We also have some family issues at present with my in laws so at the moment we can’t be certain we will get our holiday in September-lots happening all at once with them so just hoping for the best outcomes there.
Sarah xx.
Thanks Sarah. I am relieved now that there’s no fistula. That’s crossed off the worry list.
Sorry you’re having family issues. Hope that you can go away September. Things all seem to come at once with us too. I hope things improve for your family. The older we get it seems to me the more there is to worry about
Sending you a hug xx
Ann
Thank you Ann-always appreciate a hug. My parents are gone now, but my in laws are not old-only 74 and 76, but everything seems to be landing at once. My mum in law has Alzheimer’s and vascular dementia and unfortunately got up the other night and fell down the stairs, so she’s broken her wrist and got a massive black eye. My father in law normally does all the cooking and cleaning etc, he’s always been really fit, but is currently having tests and scans although he won’t tell us what exactly may be wrong. He’s been having multiple hospital appts and has cancelled his next one which involves a 48 hr hospital stay because he feels he can’t leave his wife! Never mind that we would take over and look after her!
I’m thinking it might be his prostate that’s the problem, but I’m only guessing. But he needs to get this hospital appt sorted. He’s no use to her if he’s ill, but he’s so stubborn! So, lots going on here and worry for us. At least we only live 3 miles away so can pitch in and help. If we don’t get the holiday, so be it-we’ve been lucky enough to have had 2 already this year.
Sarah xx
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