Stomaversary!

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Dear Friends,

It's my one year stomaversary.  Had my APR surgery because of a very low small rectal tumour a year ago that resulted in a permanent stoma.  Very successful, got rid of my cancer.  But the operation itself was fairly traumatic and I had a huge amount of pain afterwards which was a shock.  I am now physically healed up but as I have approached this one year I have had flashbacks to it and have been very tearful.  Am outwardly (to friends and family) coping well and get by with finding the funny side in it all, but underneath have recently been struggling.  Has anyone else experienced this?

Jane xx

  • Oh Sarah enjoy your trip you deserve a break from thinking about anything but an adventure In Scotland. 
    I am wondering if because we were all in lock down and antisocial for so long now we are going to get every virus going. I worked in reception for seven years I was sick every Christmas well working in with thirty four year olds we were working in a Petri dish especially with the heating. I hope you feel better soon the fresh air should make you feel better 

    Enjoy Scotland and tell Boris and Donald you’re away and they’re to behave xxx

    Ann
     ‍Art

  • Hi Jane.Ive just had my 3 yr anniversary and still find it hard to get my head round the idea that I no longer have cancer .I try to be upbeat with everyone and say Im fine but anniversaries bring it all back .I had thought that they would be a celebration but so far not so.the colorectal clinic who I am under now for check ups say that 5yrs is the big one.not sure how I will feel then.we will see.

    Sorry to be a downer,

    Kath

  • Dear Sarah,

    Thank you for your reply.  You have expressed just how I feel.  I have now arranged some counselling sessions through my professional body which start next week.  Am hoping that they will help my mind to quieten down.

    Jane xx

  • That’s a positive step Jane 

    Hope all goes well x

    Ann
     ‍Art

  • Your not a downer Kath 

    Its the fact of that ghoul in our lives it haunts us and dates are reminders. My sister still brings up her cancer if mine comes up. I try not to talk to her about it. Hers was over twenty years ago. She had horrendous treatment though. Things have really changed for breast cancer. Three of my friends have had it treated and it’s so much more gentle. 
    Im having a moan today. I must say I’m quite enjoying it. Misery guts me. Ha ha 

    Treat your self Kath. Do all the things you want to do xx

    Ann
     ‍Art

  • hi OldRhodie - I can relate to that. 2010 until 2015 were horrific years in terms of rectal bowel cancer and many other health issues aside from the physical pain nobody really talks about the toll of emotional and psychological pain that leaves a legacy. After 2015 I had four wonderful carefree years. That changed with the pandemic. Trauma was triggered for me and to this day I suffer with depression and anxiety. My brain doesn't seem to realise or recognise the difference in terms of suffering.

    Kath
    "don't think about tomorrow"

  • Hi Jane

    That’s a brave and positive step to take, and I hope it will be very helpful for you as it was for me.

    Sarah xx


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  • Well, I’m just back from my little Scottish break and had a lovely time thanks Ann. Such a lovely catch up with our friends, and their new doggy to meet and fuss over. I did virtually lose my voice though and I’m very tired, but will have an early night tonight. Boris and Donald were very well behaved! 

    It was funny though…my friend’s hubby asked me yesterday if I’d got connected up all right. I thought he meant to my night bag system that I use to drain my urostomy bag so started saying oh yes thankd, bags all fine and no accidents in the bed. Turns out he was asking if I’d manage to get my iPad connected to their wifi! Joy

    Poor chap was mortified! But I just laughed and said it was my own fault for not listening! How are you feeling now Ann? I’ll be thinking of you and all your appointments this week.

    Sarah xx


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  • I love that. Are you connected alright Hilarious but very embarrassing for him. 

    Im pleased that you had fun in Scotland and enjoyed the new fluffy addition

    Im okay thank you. I caught up with some sleep. Nights are the worst with Parkinson’s and I felt so weak and overwhelmed with everything. I am looking forward to Thursday. It’s breakfast club day which we really enjoy with my sis and brother in law. Plus it’ll mean I’m done with tests. Then September is the Parkinson’s appointments. 
    I remember Summer holidays on the beach now we are in waiting rooms. That’s life as we age things start needing a service. 
    I’ll keep you updated 

    Xx

    Ann
     ‍Art

  • Hi all 

    Just on way home. I okay for reversal so we will see when that’s available. It’s good to know there’s no fistula. That’s a relief. 
    Hope alls well with everyone

     Now CT scan Wednesday then the anniversary will is done. 

    Ann
     ‍Art