Everyone must be bored silly hearing me go on about this but I've had another few weeks of constant diahorrea followed by constipation! I take Immodium to stop and Senna to start! It would be funny if it wasn't ruining my life! My stoma nurse adviced taking 1 Senna every night, which I did on Saturday! Sunday only a very little output but Monday, OMG!! One gurggle and that was it, bag nearly bursting off my body and it just wouldn't stop! Sorry to be so graphic but it was horrendous! This time I haven't taken Immodium and it did stop after an hour or so! This morning I phoned the Stoma Clinic and I've been told to go back to bland foods! I haven't a clue how to make something interesting out of mashed potatoes, chicken and white rice, no veg ! Oh, forgotten bananas and smooth peanut butter! I hate sounding so sorry for myself, apologies everyone! It wouldn't be so bad if I knew WHY this is happening after 16 months but no-one seems to know!
Apologies again,
Moira x
That’s brilliant news Sarah. Legs were good and pool perfect for exercises.
Yes booked the Villa 4- 14 October but have EUA to check I’m good for reversal. I am going to have all the checks done in case I need further help but I am seriously thinking asking to leave me until after October. I’m a year now. It’s going to be tough to get my bowel working. It’s in a coma not just sleeping also hubbies got Parkinson’s which is progressive and brother got prostate cancer back. I really feel if I don’t go I may regret it long term. Who knows what next year may bring?
So at least I will know at the end of the month if I can go on a list
I will check out Matalan thanks Sarah x
Ann
Hi Moira
The first time I flew I took a letter from my CNS as I had an additional (free) bag on the plane with me as hand luggage with my supplies. But no-one has ever asked to see anything official so I don’t bother now.
I do have a card that says I need to use a loo quickly due to a medical condition but never used that yet either! And I’ve found all staff on planes and in airports really kind and understanding too. I get an aisle seat very close to a loo.
I travel in a wheelchair due to my mobility issues, so get whisked through everything very quickly which makes things much easier for me.
Wow-Seattle! That will be amazing! I did 11 hours to the Maldives in 2 stages of 7hr and 4 hr flights recently and it was fine, way better than I had imagined, and my bags were both fine,
You’ve just got to say to yourself that you can do it, and go for it. You will be glad you did!
Sarah xx
That’s my attitude Ann-who knows what’s round the corner? And I don’t want regrets about things I was too fearful to do. Seize the day as they say!
In your position I’d be tempted to hang fire and get a nice holiday in before thoughts of more surgery. It’s brilliant that you got Spain and Ireland this year already, but you can never have too many holidays!
Sarah xx
Thanks Kath and Sarah
Ive ordered a Tankini and I have a really nice sarong. Though the villa has private pool. No one will see me apart from family. I may go to the beach as well
The NHS have been amazing and normally I would never say I’m not available at a certain time. But my circumstances are a little different and I’m hopeful my team will be understanding. Yes I’m booking those flights. Very excited
Cant wait to go swimming it’s been three years!!!
Ann
You go for it Ann! Being in the water is just the best feeling ever. Get that tankini rocking the pool! I’m sure your team will understand why you want to wait.
Sarah xx
I hope so Sarah. I’m not sure if a reversal is possible anyway. I just have a feeling as soon as I book I’ll get a call. It’s over a year on a list
We will see
Ann
It’s a long time to wait with uncertainty of will it won’t it be able to go ahead Ann. I don’t have to think about that with mine being permanent and I’m actually glad of no more surgery!
I suppose I’m so used to living with stomas now it doesn’t really bother me-I knew right from the off that this was permanent and I’d better just get used to it! I wonder if you’ll miss Whoopi if you have a reversal??
Sarah xx
Hi Sarah.
im not sure about a reversal there’s a chance there’s a rectovaginal fistula. The cancer was massive so I’m okay with it all to be honest as long as the cancers out I’m happy. But I need to get everything checked that’s why the EUA
Then holidays for us. Definitely.
August and scans monitoring its a little stressful
Ann
